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RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/17/2009 10:55 PM (GMT -7)   
I have a blockage...and it hurts very badly.  cry
 
It's almost 1am and I've been unable to go back to sleep b/c of this pain.  What do I do? 
 
I drank juice and am using a heat pad on my back b/c it hurts too.  This is just so so so uncomfortable.  It goes in spurts and I can barely sit still it hurts so bad.
 
What do I do?!  I'm going to call my ostomy nurse in the morning.  I feel like I'm going to be sick too...yuck.
 
 
smurf   *smurf is not smiling...he's grimacing and holding back tears*
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/18/2009 7:16 AM (GMT -7)   

Well, I had a long night.  I started throwing up soon after my initial post and remained miserable all night.  I checked the Ostomy Assoc. site and did everything mentioned on there for the blockage, and it all helped very little. 

I spoke with  my nurse this morning and am trying to stuff down part of an Eggo and drink tons of water.  My output is still all liquid and I'm starting to feel the cramping feeling again. 

Stupid me.

My mother-in-law has my son for the day...I called her this morning and she just left with him.  sad

I thought my moments of extreme pain were behind me...and I thought my emergency family phone tree was no longer needed for my needs.  Darn it.  I am definitely learning from this and will not repeat this mistake.  What in the hell was I thinking?

Anyway, just an update on my misery.

smurf   *stupid smurf...he's exhausted, achy, and really upset with himself*

 


: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 3/18/2009 8:22 AM (GMT -7)   
Robin, I am so sorry this is happening to you. What did you eat that caused this? What advice did the nurse give you? You are very fortunate to have family close by to help with your little one. I hope that if you are reading this it means that you are feeling better.
scheduled for permanent ileostomy surgery 2/19 proctocolectomy with permanent ileostomy 2/19
tried asacol, rowasa, remicade, humira
currently on 40 mgs.10 mgs  5mgs. prednisone, 20mgs and tapering every ten days
51 years young


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/18/2009 9:29 AM (GMT -7)   
Broccoli...I ate Broccoli...steamed...not raw.  It's my favorite meal choice for a quick and easy low-calorie lunch.  I guess I need to make some alterations to my healthy eating again.  I haven't really been able to chow down on many of my favorite foods b/c of the UC...I'm now able to eat many of them again and am learning there are some that I just need to let go of.   nono   The primary two are broccoli and popcorn. 
 
In fact, I am currently oinking out on the Cheetos brand butter Puffcorn...YUM!!!  I figured it was something I wouldn't mind eating that won't hurt going through.  After last night and this morning I'm not about to eat much substance today or tomorrow...I've been traumatized!!! 
 
My nurse told me that if the cramping has gone down and some broccoli had passed I may be in the clear.  She also suggested I try water and food and if it stays down then that's good, but if nothing stayed down I needed to contact my surgeon asap.  In addition she gave me symptoms to watch out for like, continued liquid output, continued cramping and complete lack of output.  So far I'm good to go.  Now that I'm keeping water and food down I'm feeling loads better!  My husband thought he was Mr. Funny Man and asked if I wanted broccoli for lunch as I was snooping around for a tasty snack.  I'd like to see him feel this new form of constipation and then crack jokes about that devil ish broccoli!!!
 
Anyway, this has been quite the experience and I am going to much smarter about my food intake and chewing methods.  :-)
 
 
smurf     *the smurf is smiling again...and super hungry!*
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/18/2009 9:33 AM (GMT -7)   
was the broccoli really mushy? That would be the only way I would eat it for a while!!!

Sorry you had a set back...BUT don't be afraid of the foods, just use the knowledge you learned and adjust to it...like I've said before, small amounts and chew, chew, chew...then chew some more!!

Hope things continue to go well...

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/20/2009 7:47 AM (GMT -7)   

I don't know if this is still blockage issues or gas problems.  Could you guys hep me?

I still have the bloated cramping feeling and it's painful.  My output is liquidy but there are small pieces of unprocessed foods.  I'm not passing much of the gas, but that's what it feels like...just lots of trapped gas. 

I'm taking GasX and doing the tummy massages.  I don't know if this is from the same blockage issue b/c it is painful, but not as intense. 

What do you think is going on with me?  I saw my surgeon for my final follow up and I wasn't feelign this ucky at the time, or I would have said something.  He did explain that if the blockage prevented output and caused extreme bloating and vomiting, I should go to the ER for a stoma enema (weird, but okay). 

Do you know of foods or drinks that really just race right through you and seem to clear out anything in the way?  I'm drinking white grape/pomegranite juice, and water. 

Thanks you guys!!!

smurf    *smurf is grimacing and feeling very very sick*

Oh, and wish me luck...I'm meeting a new client family today and going to a school meeting with them...lots of new people around during this awkward time...*sigh*


: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/20/2009 8:20 AM (GMT -7)   
Robin,
I have had my share of partial blockages... just like you are experiencing and it is NOT any fun at all!! First thing I do when I realize what is happening is stop ALL food intake, only drink CLEAR liquids - just like they give you at the hospital. Warm liquids help more than cold liquids. Tummy massage, heating pad and try to continue moving about. I also resort to pain killers and/or muscle relaxers or xanax. They can be Very uncomfortable. That's just how I have to cope. But it has worked for me. Sometimes it takes a few days to get things thru... pasta is a good first meal - noodles, Kraft mac and cheese, soup (no veggies). If you still have discomfort, really PUSH the liquids and even some dairy if you can tolerate it.

For a few days after the blockage clears, my belly is sooooo sore that I can barely move, like it is bruised. I continue a very bland and very soft diet for several days to be sure that all is passing well and gradually go back to a normal diet. I really, really watch veggies. When I eat brocolli - only the florets - no stems and cook them well.

Let me know how you are doing.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Mysticlife
New Member


Date Joined May 2006
Total Posts : 10
   Posted 4/13/2009 10:17 AM (GMT -7)   
hey Robin, I've had Crohn's disease for 25 yrs now, was diagnosed when I was 6....I've had 5 bowel resections over the yrs, the last being an ileosomy surgery as well...anyways to my point, ive been searching the net for any help or support with blockages and came across your post, I've had a couple of small blocks before, by small I mean passed within 4 or 5 hours, pain wise I think they all feel like it's never going to end. This past weekend we had our easter dinner, and I ate like I always do, Im not much of eater to begin with, and I chew chew chew....but silly me ate, some gummy life savers that my beautiful daughter had shared with me, but we where in the middle of an easter egg hunt, so I chewed "kinda" and never really thought about it.....after dinner that night I started to feel the block slow but sure, by the next morning I was calling my mom to Take my little girl bc I couldn't get up to get her breakfast......the block lasted for a never ending 28 hours...and I felt a little better after that, but it seems I feel worse today....you said on your post that you felt gasey and bruised....I'm wondering how long this lasted for, like all of us with these aliments...life must go on, and being a singel mom who works and goes to school pt it's hard to put it all on hold for more then a day, I just hurt so bad today I thought I was doing better....I haven't posted much in my time, but i read alot on this fourm, and its been so helpful, so thanks to you and all that share......

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/14/2009 3:25 AM (GMT -7)   

Hello Mystic,

Sorry you had such a rough time of it with your blockage... they really are NOT fun at all.

The bruising and soreness, for me, lasts a couple of days.  I can almost feel the food passing thru my intestine when I am that sore and just stick to a relatively soft/bland diet for a few days after for comfort's sake only.  Tylenol does help also at this point.

Hang in there - the worst is past.  You are on the mend again now.  Good to hear from you on HW but sorry it was under these circumstances.  Feel free to chime in anytime, k?


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 4/14/2009 4:30 AM (GMT -7)   

Is this any easier for ileostomies rather than colostomies - since the stool is watery to begin with and the transverse time is like 2-3 hours from mouth to small intestine?  Any insight onto this?

 

Thanks,

bob


Mysticlife
New Member


Date Joined May 2006
Total Posts : 10
   Posted 4/14/2009 6:45 AM (GMT -7)   
thanks robin.....I feel much better today, although I still feel like someone wacked a baseball bat across my belly a few times, and once on my back for good measure....but I can pick up my little girl today...and that makes me feel better all by its self....and your right I did feel like I could feel every piece of food.....it's all so strange somtimes.....thanks again....M
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