I think I posted here once before but am so overwhelmed I can't remember! Sorry!
I have uc - pancolitis- since 2002 and had a colonoscopy last week only to learn that my GI found pre-cancerous cells in upper colon. I am having a repeat c-scope done in a few weeks. If the same is found I will need surgery. I am almost leaning towards the surgery anyway because of the extent of my disease and the increased risk of cancer. Surgery has always been a possibility for me because I have never managed to go into remission longer than a few months. Most drugs only work for so long and keep my disease "at bay" but I am never symptom free.
I am terrified and have lots of questions I am hoping one of you brave souls will help answer for me!
1 - can the surgery to remove the entire colon be done via laproscopy?
2 - how long is hospital stay?
3 - how bad is pain immediately after surgery and in days to follow?
4 - how likely is it to have a "bag" permanently?
5 - how bad is subsequent surgery to remove bag and have j-pouch?
6 - anyone elect to have the surgery?
7- anyone have surgery due to pre-cancer cells?
8 - how likely is it that pre-cancer cells will turn into cancer and if they don't find them in repeat c-scope, how likely is it they will come back?
I am sure I have more but those are the immediate ?'s I have. I am sorry in advance if I am not using proper terminology!
UC diagnosed in 2002
Currently taking 400mg Asacol, 9 per day; 100mg of Imuran per day; Remicade every 7 weeks
Mommy of twins
Previously a Promotions Marketing Manager
Husband in law school.