is the stoma supposed to ache?

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sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 3/19/2009 11:05 AM (GMT -7)   
My stoma aches when big gas or a big "load" is about to come out. Is that normal for a new stoma--3 weeks? i'm just starting to eat more foods. Everything is moving along but the stoma seems to move and wind, then I feel some pain and either a lot of gas or poop comes out. Should the pain worry me?
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/19/2009 2:23 PM (GMT -7)   
ur stoma will b extra sensitive the first few weeks, u'll feel everyyyyything, it shouldnt hurt tho. as ur body gets used to this new thing hangin outta ur belly, u'll feel it less n less. if its painful make sure ur wafer isnt too tight. the stoma has no nerve endings so it shouldnt hurt at all mayb just feel a little weird
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 3/19/2009 7:29 PM (GMT -7)   
I agree that it will feel funny sometimes, but it shouldn't be painful. Did it just start? Did you just change your appliance?

I still "feel" my stoma sometimes...never painful...but if I am not "aligned" correctly I feel it more.

If it continues to concern you, give the ET nurse a call. I couldn't hurt! (pun not intended)

justjenjen
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Date Joined Nov 2003
Total Posts : 518
   Posted 3/19/2009 8:01 PM (GMT -7)   
Sometimes when I was healing I had some achy days. The other day I something going on (stomach bug or food poisoning) and my stomach was aching all day. It's not actually the stoma but the area around it. If the pain is bad I think it warrants a call, but it could just be your body needs to do some more healing.

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/20/2009 7:40 AM (GMT -7)   
Yep...my stoma and the ostomy site was pretty sore up until week 5. You'll feel better soon!!!
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 3/20/2009 8:16 AM (GMT -7)   
yep tottally normal. Two years out, i still have a time ever now and then where i will get an achy feelign aroudn it.

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 3/22/2009 8:01 AM (GMT -7)   
Yes initially the stoma is swollen for about 5 weeks and thereafter it regains its shape. During this period there is pain. The pain may also be because of wrong cutting/too tight stoma hole in the bag. Do not worry these teething problems would go away in a couple of days. Cheers and take care
45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery


vette guy
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Date Joined Nov 2006
Total Posts : 650
   Posted 3/22/2009 10:54 AM (GMT -7)   
summerstorm said...
yep tottally normal. Two years out, i still have a time ever now and then where i will get an achy feelign aroudn it.
Exactly! It's probably not your stoma itself, but the tissue around it, which is completely normal. Plus, you've only had your stoma for 3 weeks. You're still healing. Give yourself a well  deserved break from any worries....you've earned it!!!

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 3/22/2009 11:55 AM (GMT -7)   
thank you so much for the reassurances!! I am so relieved. I'm trying hard to keep track of which foods cause gas,etc but it keeps changing. Ha!

And on Friday, my visiting nurse was helping me change the appliance and it would NOT stop pooping--we're talking like 20 mins!! Finally, she did it really fast in between spurts.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.

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