Medications after surgery

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ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 3/22/2009 8:14 PM (GMT -7)   
Hi all ...

So it's exactly 2 weeks before my surgery and I'm getting a bit nervous. I woke up this morning and shouted out, "2 more weeks of this crappy medication and then I'm cured!", I found myself talking to my wife's pregnant belly "Your daddy's gonna be just fine ... :-) " (with a smile)

To be honest, the faster the date approaches, the more scared I get, but I put a smile on for my wife and mom.

I know it's for the best and everyone keeps telling me that this is the best decision for the future, which I know .. but I guess it's understandable to be a little freaked out? :-)

So ... as far as medications are concerned, I'm on Lialda, Azathioprene, 30 mg of prednisone (tapering) and the enemas. The surgeon mentioned that sometimes they increase the dose of prednisone prior to the surgery? if so, how much and when does this happen? Do I do this when I have my appointment with the pre-op nurse? Does this even sound right?

Finally, as far as the other medications, do I stop these right away before the surgery or after or do I ween myself off all the meds?

Sorry ... so many questions!!!

Getting a little jittery now ...

Post Edited (uc-kp) : 3/23/2009 3:43:54 PM (GMT-6)


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 3/22/2009 8:37 PM (GMT -7)   
You didn't say what your illness is. But, if you have Crohn's like me.....I don't take any medications at all. I do, however, still go for the Remicade injections every couple of months. I haven't had any Crohn's symptoms in years, but I go for the Remicade to make sure I stay that way. Maybe I don't need them, but I'd rather not find out the hard way that I do!
 
Lot's of luck on the surgery.. I'm sure you'll have a lot of questions afterwards, but there are a lot of fine people here that can answer them for you. Congrats on the new baby, too! Good luck and keep us posted.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/22/2009 8:43 PM (GMT -7)   
i have never heard of increasing pred, they usuallly like to try to get you off it if possible HOWEVER if takign you off will make you flare they wont do that.
As for the azathorprine, i'm not sure, some of my drs and pharmacists said wean off, some said just stop. i just stopped, my surgery was on a tuesday, and the last day i took my meds was sunday morning i didnt see anysense in takign them on monday since i was doind the prep, lol.
I did stay on pred though, cause everytime they tried to take me off i would get so much worse.

Its totally normal to be getting freaked out the closer you get, just keep remebering why you are doing it. Make you a pros list and carry it around. Come on here and read all the good stuff we say about it, all our happy times since having surgery.

moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 3/22/2009 9:57 PM (GMT -7)   
uc-kp said...The surgeon mentioned that sometimes they increase the dose of prednisone prior to the surgery? if so, how much and when does this happen

 
When I had my surgery, the surgeon explained that normally when you have surgery your body would naturally produce steroids in its fight or flight state, but because I had been on steroids (40mgs of prednisone) they gave me a boost of more steroids via IV right before surgery.  He explained that my body was used to not having to produce the steroid, which is why they gave me an extra dose.   I took my 40 mgs. before I got to the hospital, and then they gave me more. I didn't notice any change.  After surgery I was back to the 40 mgs., and then before I left the hospital they cut my dose to 20mgs!  I have been tapering ever since, and am currently on 2.5 mgs, soon to be off it all together!  I can't tell you about the other meds. 
Before my surgery I read and re-read everything I could about living with a stoma.  I also had a home visit from a woman who has had an ileostomy for 14 years.  Her visit more than anything else gave me a real sense of peace with my decision to have the surgery.  I love this forum, but there is something to be said about meeting with an ostemate face to face who tells you and your family, who have been watching you suffer and have also suffered because of it, that your life will be SO MUCH BETTER soon.  She is the president of the support group which meets at the hospital where I had my surgery.  Check and see if there is a support group near you and give them a call.  The person who came to my house was so wonderful.  She brougt me a ton of reading material and talked to my husband, daughter and me for over an hour.  She also brought her little traveling pack and showed me what she carries with her,  showed me examples of different kinds of bags - clip and lock and roll, told me about powders and pastes and tape and m-9 drops and underwear!  She gave me more information than I could absorb, but it was so appreciated.  Even if someone can't do a home visit, maybe you can talk to someone on the phone.  Check it out!

scheduled for permanent ileostomy surgery 2/19 proctocolectomy with permanent ileostomy 2/19
tried asacol, rowasa, remicade, humira
currently on 40 mgs.10 mgs  5mgs. prednisone, 20mgs and tapering every ten days
51 years young


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 3/22/2009 11:45 PM (GMT -7)   
I am tapering off pred now after surgery, its an 8 week plan to get me off the pred since I have been on it for many years. I was put on 300 mgs of hydrocortisone in hospital but that was to help stabilise my condition ready for surgery as I was in ICU for a couple of weeks. But I am very happy to announce that I no longer have that crohns pain and no drugs apart from 25mg of pred , lexapro for depression, potassium tablets and just finished double dose of anti biotics but no more toxic stuff like the morphine or methotrexate or humira etc.
take care and good luck

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5697
   Posted 3/23/2009 6:14 AM (GMT -7)   
The prednisone boost is given to you via IV before, during, and after surgery, I believe. You don't need to ask for it or take any of your UC meds to the hospital. I had surgery 8 years ago and have taken no meds since. Your surgeon will also advise you post surgery on pred taper if you are still taking the pill form.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/23/2009 10:51 AM (GMT -7)   
I stopped all drugs the day before surgery...I wasn't on pred this last time, but did taper after surgery, in the past.

Make sure you write down these and any other questions to bring to your pre-op visit...like people, many surgeons do things differently, and it is best to know what yours is planning on doing!
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