Answer to weird stoma issue- ileostomy newbies for you too

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jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/25/2009 12:04 PM (GMT -7)   
I saw the stoma nurse today about the weird way my stoma was separating from the skin and the bottom.
Well - she said that the inner stitches dissolved before the skin had time to heal. The reason that the skin didn't have time to heal was because of the long term prednisone use.

That makes sense.... my pred. is impeding the skin to heal as quickly as usual.


So I have to use stoma powder in the crevices and skin barrier to seal it and then proceed with the changing of the bag.
She said that in 2 weeks ( by then I will be off of the pred) it should be healed.

I feel so much better because it isn't infected or bleeding or anything really bad.

Thanks guys yeah
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 3/25/2009 1:21 PM (GMT -7)   
You are going to feel so much better in all respects once that prednisone is out of your system! It's a great feeling.

Glad to hear that things are under control and that it wasn't anything too serious.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for '09 to form j-pouch


chelebel
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 3/26/2009 2:32 AM (GMT -7)   
Hi Jackie, just curious how much pred were you on when you went in for op? I have mine next week, but I have managed to taper down to 2.5mg. Glad that things are getting better for you. x
Panproctocolectomy scheduled for 3rd April.  Diagnosed Ulcerative Colitis 18 years ago.


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/26/2009 7:09 AM (GMT -7)   
I was on 30 mg. and then at the hospital prior to surgery they upped it ( apparently this is procedure). I am down to 20 now and going to 15 mg by tomorrow.

I can't wait. Then I will only be taking my Synthroid, Lexapro, and protonix-- wow three pills. I used to take up to 20 pills a day.
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


chelebel
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 3/27/2009 2:29 AM (GMT -7)   
Thats going to one of the great things eventually no more drugs for the uc. Bet you can't wait to get of that pred. Take care x
Panproctocolectomy scheduled for 3rd April.  Diagnosed Ulcerative Colitis 18 years ago.

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