ileostomy without wearing an appliance??? CAN IT BE TRUE????

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RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 3/25/2009 8:23 PM (GMT -7)   
Hey,
 
I went for a breast augmentation consultation today because I lost a lot of weight and can't gain any back and it turns out that the Dr apparently came up with "continent ileostomy" or K-pouch.  He had a pic up in his hallway of this procedure being tried on a dog.  He said he didn't go through with finishing the research and it had to be approved by the FDA and needed more research when he decided to go into plastic surgery.  He doesn't know if anyone picked up where he left off but I googled it and I was amazed with the procedure and how it works and NOT WEARING AN APPLIANCE!!!! wow, is there hope???? shocked
 
So they wrap this intestine tight to where nothing comes out of the stoma anymore and the a device kind of like a defribulator is put in u and with a magnet from the outside is used to release the fecal matter whenever you need to empty.  Isn't it amazing???
 
Does anyone know anything about this or has this procedure done??? Pleas share any info.  I left my surgeon a message to call me to discuss this and see if I'm a candidate.
 
Just thought I would share this with you all.  I also hope this gives us hope to get us off the appliances!!!!!!! yeah
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Bowl resection/Stoma repair June '08
6ft. intestine left
Currently trying to learn about the "new me"


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 3/26/2009 5:22 AM (GMT -7)   
What's the name of the procedure Rita?
I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 3/26/2009 6:07 AM (GMT -7)   
Go to j-pouch.org. One of the discussion forums on their discussion board is dedicated to k-pouch and other types of surgery.

--Mom of bratcat (17 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 3/26/2009 10:47 AM (GMT -7)   

This intrigues me since I will find out in the next couple weeks if I am going to be facing the decision of an ileostomy. I researched this some and am a bit confused as to why one would chose the k-pouch over the j-pouch/ Is this for people (j) that still have their sphincter muscle available. If this is the case a j-pouch would not be an option for me for I have sever anismus and constant contraction and to function of my rectal muscles. I have already had my colon removed and am currently connected? I am just wondering if any of you know if I would be a candidate for the k-pouch. I am seeing a motility specialist recommended by my surgeon on Monday and may ask him too for I feel he is going to say this is one of my only options.

Just curious.

Lizzie


Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Currently Diagnosed with Anismus and getting second opinion
 @ U of M March 30
 
"The Greatest Healing Therapy is Friendship and Love"


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 3/26/2009 4:16 PM (GMT -7)   
I'm thinking it's not a Kock Pouch aka K Pouch since RITAS mentions "a device kind of like a defribulator is put in u and with a magnet from the outside is used to release the fecal matter whenever you need to empty". The Kock's Pouch doesn't involve this and was invented by surgeon Nils Kock and has been around for years. This sounds like a new thing. I have read about a Zassi device but that's been in the making for at least 10 years without anyone I've heard of actually getting one.
I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 3/26/2009 7:09 PM (GMT -7)   
He told me the name was continent ileostomy and when he was doing research on it, he did it on a dog and he showed me all the pics. It looks amazing and sounds great but now we have to wait and see if it gets approved by the FDA. I left a message to discuss this with my surgeon at Cedar Sinai in Los Angeles but I haven't heard back from him yet. I don't think it's the K-pouch though
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Bowl resection/Stoma repair June '08
6ft. intestine left
Currently trying to learn about the "new me"


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 3/27/2009 4:02 PM (GMT -7)   

I am so confused becuase when you search K-pouch it says the kocks pouch or whatever also known as continent ileostomy. I found a girl who has one and her stoma is flush with her belly and has a valve made from her ileum. She wears a bandage over it.....small, you can hardly te.. She had rectal Cancer. She drains it with a cather 3-4 times da day and wears no appliance. She had this performed by Dr. Fazio @ Cleveland Clinic. I know the k-pouch, from research, has been around for a long time, but I know, again from researching, it has been modified. Also, whats the defference from BCIR.....I have found infor on this too.

Lizzie


Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Currently Diagnosed with Anismus and getting second opinion
 @ U of M March 30
 
"The Greatest Healing Therapy is Friendship and Love"


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 3/28/2009 10:16 AM (GMT -7)   
Lizzie I'm as confused as you are..haha.  When I came and google continent ileostomy it came up as k-pouch also but the way he described it with the "pace maker" and "magnet device" didn't fit the description.  If I hear more about it from my surgeon, hopefully in the next week, i'll update u.
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Bowl resection/Stoma repair June '08
6ft. intestine left
Currently trying to learn about the "new me"

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