i'm glad you've found this site too. it's the best place with wealth of information. i've learned a lot here.
i'm so sorry you are in so much pain. you're so young, it's so unfair you have to hold back your life bc of it. i've also haven't had ANY quality of life in the past 15 yrs. i'm 35 yrs old and since i was 20 i can't lead a normal life. it's really sad.
from what you're saying it seems your colon is doing a good job, but your rectum is totally obstracted. this condition can significantly effect the quality of life and ruin it!! i so feel for you. do you have touble releasing gas too?
i haven't had sugery yet, except for a prolapse of the rectum and rectocele repair. i have colonic inertia, which means my transit time is way too long. the zits marker test showed i had all 24 markers in the left colon after 10 days. my colon is simply paralized and not doing it's job of pushing the stools. i'm planning to have a colectomy and my small intestine attached to my rectum. hoping to have no bag. i too have a certain level of anismus though (the puborectalis doesn't relax enuogh), but my drs think it's not too sever and that it won't bother me after the colectomy. i truly hope so, cause if it does, then i may too need a colostomy.
i've never heard about
the Ace procedure.. what is that? is it a surgical thing? can you describe it for me?
so as you can see, i don't have a bag, but if you want to ask ppl that do, then i suggest you start a new topic with questions about
having a bag.
best wishes to you and please keep us posted on your progress of finding a solution.
06/05/2007 - STARR procedure
colonic inertia w/ pelvic floor dysfunction