Stump quesion after subtotal colectomy

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ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 3/28/2009 8:47 AM (GMT -7)   
Hi Everyone.  Its 10 days now since I had my colon removed due to UC.  I have a 6-8cm stump left which leves me the option of a J pouch reconnection.  The question I have is to anyone who as left with a stump.  I know you can have dischage (mucus etc) after the op, however I think I am having a UC flare in the small bit of tissue thats left.  Did anyone else experience a flare so quickly after their op.  I am tailering off Prednisolone at the moment, and am no longer taking any meds for UC (was taking Asacol, and Azathioprine along with the prednisonle). I am going to phone the hospital on Monday but in the mean time have increaed the dose of prednisolone to get me through the weekend.  I have been recduced to tears this morning in bed feeling so down about having a UC flare after surgery.  Did anyone else experience this, and if so were you able to get it under control without steriods through using some form of suppositories.
 
I have been so positive about the whole situation of having surgery etc, however last night was up and down to the bathroom passing blood and feeling very inflammed/pain from my rectum.  The steriods I have taken this morning have clamed it right down which was the patten I would follow for a flare up - I always responded well to steriods but could never stay off them.
Any input, or experience would be REALLY REALLY appreciated.
Many thanks,

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/28/2009 9:10 AM (GMT -7)   

Yes, with that much rectal stump left you can continue to suffer from UC.  To keep the flare under control you can continue with your UC meds.  Talk with your doctor about using suppositories or enemas and continue to try to get off prednisone.  My surgeon wanted me completely off pred before my reversal surgery; your surgeon may feel differently.  Do know that what you are experiencing is normal and will go away after your next surgery.  You can meet others who had this problem at www.j-pouch.org

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 3/28/2009 2:16 PM (GMT -7)   
Thanks Sue - I have read a lot on the web today and what I have does sound like dysfunctional proctitis which a lot of people say can be managed by Asacol enemas etc..

I am def gonna phone the hospital and get some meds to get this under control - and yes def gonna try to get something non steriod based. I have come too far in the last week and a half to fall now. I kinda think to every problem I face there must be a solution out there!!

Thanks for your reply and support - it is very much appreciated.
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