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monkey_99
New Member


Date Joined Mar 2009
Total Posts : 17
   Posted 3/31/2009 7:53 PM (GMT -7)   

Hello everyone,

I was referred to this forum from some of the folks on the UC forums because I needed to get some info on a surgery that I'm thinking about.

I have UC and I was told that the J-Pouch was not so much a last resort to being treated with meds but that I should wait to do it until I really think that I can't stay under control on the meds anymore. I really wanted to know if anyone here has has this done and if so what are the pros and cons to it. I was told that it is a easy surgery but has a long recovery. How much of that is true... i don't know but any help would be great.

Thank you in advance.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/31/2009 9:12 PM (GMT -7)   
i dont have j-pouch i have a perm ileo, but i had it to get out of UC. i dont know what kind of shape you are in now, but its best to do it when you are healthy you will heal faster, i know that sounds stupid, lol.
Pros-too many to list! but major ones, no more meds, no more sick and no more wonderign where bathrooms are!
Cons it is surgery and it is hard. I dont know about it being an easy surgery, but yes the recovery is hard, BUt the recovery and pain from that will only last a few weeks and UC pain will last forever.
good luck with whatever you decide

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 3/31/2009 10:10 PM (GMT -7)   
Hi
With due respect to your concern, I feel that we had addressed your concern in response to your earlier posting, either on this thread or on Ostomies Forum. You would find lot of information on Ostomoies Board. In any case we are always available to address all your concerns and queries. Please feel free to ask for any information you need from us. Take Care.
45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/1/2009 4:01 AM (GMT -7)   

It is a big decision....glad you stopped by to ask questions!

Hopefully suebear will be by...she'd be a great one to ask questions from!  You can go to www.j-pouch.org and I am also linking a healing well j-pouch search.  Good luck with your decision!

http://www.healingwell.com/sitesearch.aspx?cx=010904608862850737972%3Abe-6h9dblc4&q=jpouch&cof=FORID%3A9#1146


Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 4/1/2009 6:30 AM (GMT -7)   
Easy surgery... NOT

Remember, the surgery consists of having your colon removed. Not exactly a small thing. Not something that can be transplanted. Not something that you can change your mind and have put back in again..

Chances are you're on Prednazone, which lowers your body defenses against disease. Hospitals are places full of sick people.. and chances are there are airborne viruses in the air. When you have no natural defenses against them, as the prednazone has lowered your immunity against them, you have to be caeful when going out of your room and exercising.

Surgery is your last option. It works.. It worked for me and today I live a relatively normal life. It took a while to learn how to live with an ostemy bag, and how to attach it. Your diet is going to change also, what foods cause what consistency of the waste that goes into it and how you can control it..

It's not easy, but you learn. Because you have to. But you do, you get better, you FEEL better. it's all a mental attitude after the surgery.

And you return to enjoying life again.... :)

Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 4/1/2009 8:30 AM (GMT -7)   
Hey Monkey :-) I was in the same place you are about a year ago. I got dx with UC when I was 16 in 11th grade.. I dont really remember how it happened, but I just remember all the sudden everything I ate was coming out crazy fast and I would have to go to the bathroom SO many times DURING school blush that was super embarrassing! I told my teachers what was going on so they would know to just let me go when I needed to..some teachers dont even let you go shocked So after 8 months of not getting anywhere where I lived, my parents decided to take me to CAMC in Charleston bc apparently where I live, the doctors have no idea what they're doing! And after 3 days of being there my doctor, who is my Angel :-) did a colonscopy and found that I had severe UC. And since my D was so bad when I used the bathroom ( it was always the D ) he wanted to try something other than pills. So I had 3 infusions of Remicade..which only worked for a week ( although some people actually go into remission with Remi..everyone's sooo different) That didnt work so he tried prednisone..60 mg..I had every freaking side effect possible with those roids! The moon face, the wieght gain 20 lbs!! one minute id be laughing then someone would say it was raining and id start crying bc i didnt want it to rain..the mood swings..my poor boyfriend stayed with me through all of this haha he really loves me yeah So on top of the roids, I was taking a methotrexate shot once a week which made me sick for 2-3 days after i took it..that SUCKED majorly! And I was taking a multi-vitamin, iron, folic acid, and acid reducer for acid reflux blahhhh tooo many meds! 11 pills a day was wayy too much for me but I took them bc I had to if I didnt wanna be sick all day. I got so sick my mom took me out of school and i was homeschool for the last half of my 11th grade yr. And had to quit my job bc I was so sick sometimes I couldnt get out of bed without wanting to pass out. I had no energy..and I was 16! not 80..that'd be way different..Life was at its lowest then but I always manage still to this day to stay positive and keep my head up. Of course I had bad days but God got me through everything :-)   And after months of taking ALL those pills and shots and being so sick I wanted to get my life back. So I decided, myself at 17, which is a HUGE decision to make on your own whether your 10 or 100, to get ileostomy surgery. And honestly, It was the BEST thing ive ever done for myself! There aren't any more nights where i wake up and im in so much pain i have to crawl to the bathroom, or wake up every morning feeling sick, no more pills and shots, no more pain, no more disease! Nov.19.08 was my surgery. And for everything that I went through before I had surgery compared to how amazing I feel after only 4 months!! I wish so bad that I wouldve listened to the people on here and got surgery a looong time ago! I was so afraid. I was afraid of surgery, of having the bag, but before you let yourself get uncontrollable with meds, Id seriously get surgery. I can't tell you how happy I am now. I feel like a normal teen again. And I ran for the first time in 2 years last month smilewinkgrin Of course, with any surgery there's recovery time but when you have surgery, every day of your recovery you will feel so much better and I promise you, this will be the best decision of your life. Sorry this is so long, but I just had to share lol I hope this helps you :-) Let me know if I can do anything or answer any ?s you have
 
      God Bless You :-)
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =]
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"

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