So I spoke with my PT this afternoon. She said that Dr. Chey does not want to think surgical right now and even though she was adament that the biofeedback did not budge anything the first time and I did it weekly for 75 min sessions and tried the stimulator, manual therapy, and baloon therapy. he asked her if there was anyting else she thought left foe me to try and the only thing she told him was about the at home biofeedback machine. It is like what you do in the office with the rectal probe, but small and you cannot see the wave lengths. She said I can do this daily and I should know within a month if its not going to be beneficial He is having me try for two months, which I will do, but am just so discouraged. I mean....why would it work the second time?
She is going to get a hold of me next week to set this up to start. Hodaya- Yes, it was Dr. Dujovny's idea and he had consulted with a colleague of his within their practice. Their is information on it working for constipation, but it does seems that all of the studies that involved those who had both pelvic outlet obstructive disorder and colonic inertia did not have successful results with it. All in all....I would try it, but I guess it would be up to their recommendation. Seriously, I am so reasy to just have surgery. I have been researching in detail the BCIR which is a continent ostomy without a bag and you use a catheter to emty and the stoma if flush with the skin, etc. I have been in contact with a hospital in FL and they perfoem it at Cleveland Clinic. They believe I am a candidate for this surgery....it is major much like the TC with a longer 8-14 day hospital stay, but if I have to have an ostomy it is omething I am serisouly lookig into. I am so sick of living like this....waiting.....feeling crappy....etc. I will make them happy and to the biofeedback and maybe with a miracle it will work, but I am not holding my breath.
Anyways....Janie...glad to hear you are doing so well. I have hear the Lomotil is good. I hope this works out for you and you can still feel empty.
Hodaya....So happy about you mom! That is awesome!!!! Prayers have worked. Hope your hangin in there...
Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Currently Diagnosed with Anismus and getting second opinion
@ U of M March 30
"The Greatest Healing Therapy is Friendship and Love"