5 days to surgery ....

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ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 4/1/2009 8:21 AM (GMT -7)   
ok .. so now my surgery date is coming closer and closer I'm getting terrified :(
Ughhh .... I have SO much support and everyone is optimistic around me but I feel like I got rolled over by a truck right now.
I'm tapering my prednisone right now and on 25 and am feeling the tiredness, can't wake u in the morning, mucous in my stool .... I just can't wait for all this to go away already.

scared $hitless ... no pun intended :-)

chelebel
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 4/1/2009 8:33 AM (GMT -7)   
Me too - my surgery is on Friday and I have the 'scared crapless' feeling too!!!!! Although I am at the lets get on with this and get it over with stage too. SO looking forward to being of the pred (and hopefully get rid of the bloated feeling that goes with it eventually). Anyway prob won't be back on here for a while (still got lots to organise at home) so all the best of luck to you for you surgery. x


Panproctocolectomy scheduled for 3rd April.  Diagnosed Ulcerative Colitis 18 years ago.


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 4/1/2009 8:37 AM (GMT -7)   
uc-kp
I hate the tapering process. I am going through that also. I am down to 15mg. Think of it this way... no more pred after you finish this taper. No more medications for UC.....

Try to focus on getting your hospital goodies together. Try to enjoy the days before surgery and getting your house in order.

My suggestions for home:
Get a heating pad- your back might very well hurt post op and it also helps with the gas pains

Get bottled water and ice pops for home. These helped me to keep hydrated.

Extra Pillows

Baby wipes to clean the inside of the ostomy bag

Water bottle to rinse out bag when you empty



These are just some things that I have learned in the past two weeks since my surgery.


turn
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 4/1/2009 8:38 AM (GMT -7)   
Best of luck to you buddy .... you have a list of things to take to the hospital? Are they making you do a bowel prep before? Wanna compare lists? :-)

Mine is on Tuesday next week ... I've got SO much work to finish before then :(

chelebel
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 4/1/2009 11:11 AM (GMT -7)   
uc-kp thanks. Not even packed my bag yet (oh dear running out of time) just packed the usual toiletries, some anti-bac wipes so I can wipe round my bed, etc, and some gel for my hands. Been told to take nighties instead of pjs, got my i-pod with me loaded up with some chillin music, also some magazines cos I've heard u cant concentrate to read a book. Also taking lots of good luck wishes from my family and friends (going to keep that with me at all times!). My 12 year old daughter gave me a card today with such a wonderful message on it that she had written so will def be bringing that in with me.

No bowel prep to take before I go in, but they have told me I will have an enema the night before and then the morning of surgery (nice!), but at least it will be the last enema EVER.

Which op are you having? I know I have left everything to the last minute thinking theres no point in doing it to soon and know I seem to have run out of time! Off to finish vacuuming (last time I do that for a while as well!). x
Panproctocolectomy scheduled for 3rd April.  Diagnosed Ulcerative Colitis 18 years ago.


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 4/1/2009 11:23 AM (GMT -7)   
I'm having a 2 step J-pouch surgery. Ughhh .....

I'm planning on taking the following so far:

1. i-pod (MUST have)
2. Laptop :-) (wifi at the hospital)
3. a book (What to expect when expecting for fathers to be)
4. Some comfortable clothes (I don't plan on being in a gown for the whole time!)
5. Toiletries
6. Sleep mask
7. GasX (read on here that it was a MUST!!)
8. Cellphone !!!!
9. my wife and mum :-)

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/1/2009 12:54 PM (GMT -7)   
chelebel-you wipe the bed too? that's awesome! everyone always makes fun of me for doing that! do you clean the remote and stuff? and do you do it when you go to hotels?

uc-kp-this is the best way to get through the next couple of days...say to yourself, "this is the last thursday i will ever have to deal with this disease!" "this is the last episode of Lost (if you watch that) i will ever have to worry about missing because of this disease"
And keep that Pro and Con list on you at all times!

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 4/1/2009 3:03 PM (GMT -7)   
This is the last time I'll have to worry about missing a conference call because of my bloody (literally) disease !!!

I dunno if that's a pro or con hehehehehehhe

All jokes aside, I've been in meetings at customer sites where I would all of sudden have to GO and it's so embarrassing !!!!

Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 4/1/2009 3:28 PM (GMT -7)   
RE: prednisone

It's a drug with a double edged sword. you really need to be careful getting off of it.. Once I got down to 10mg, my doctor took me off it one MG at at time per week..

The first day I was off it.. 3 months after surgery.. I got a pizza and celebrated :)

Good luck !!

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 4/1/2009 3:39 PM (GMT -7)   
I've been off it completely only twice in the last 10 years ... yep .. NOT GOOD.

I am SO looking forward to get rid of this ....

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/1/2009 8:54 PM (GMT -7)   
Just dropping by this thread to wish all of you going into surgery soon the BEST. No one has lied to you about post surgical pain... that is a given. But it CAN be controlled. Speak up and let them know if it isn't. Speak Loudly if you have to. Some of us were in so much pain before surgery that it takes a little extra boost to get it under control initially - does that make sense? Once you are under control... MOVE, walk, sit in the chair. It helps the overall healing process, as much of a pain that it can be and probably will be the first couple of times. Just hang in there, or as my hubby tells me, Just Suck it up - it will pass!!! Again, I have been in the new shoes you all are about to try on for the first time. It will be sooooo worth it to be healthy and actually living your OWN life again not controlled by the disease.

It would be nice to hear back from you all just as soon as you can, esp if you can take your laptop with you. We'll understand if the first message doesn't make a lot of sense -= pain meds and all!!! Or have a family member or friend log on and update us if you cannot.

I wish you all the best. Keep your chin up, and Keep a Positive Attitude. You all will be experiencing new things in the upcoming weeks. It's just a learning process and you can do it and will be mighty thankful that you did once you recuperate.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


chelebel
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 4/2/2009 3:08 AM (GMT -7)   
Thanks so much for all your kind wishes. Thats me all packed and ready to go, just having one more time on the laptop to catch up. Don't think I can use the laptop in hospital I am going into, so might be a while before I am back on (but I am hoping not TOO long). Feeling strange - I feel quite at ease with it all, but with this edge of dread and fear!!! Just want to come out of this feeling well and with hopefully not too many complications (but knowing me there will be something!)

Anyway thanks again and best of luck to everyone else going through this. uc-kp good luck for next week (we'll be able to compare notes!).

Take care everyone. x
Panproctocolectomy scheduled for 3rd April.  Diagnosed Ulcerative Colitis 18 years ago.


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 4/2/2009 7:34 PM (GMT -7)   
Best of luck !!!!!!!
We're all in His great hands.

:-)
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