Stage 2 a couple months away

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Regular Member

Date Joined Mar 2007
Total Posts : 111
   Posted 4/1/2009 12:26 PM (GMT -6)   
My son, 19, had the first step of the J-pouch surgery almost a year ago.  He is scheduled to have step 2 in June (not sure if it's going to be a two step or three step).  He is scheduled for the 3rd week in June and is planning on returning to college at the end of August.  Just wondering what to expect.  Will he be ready to go back to school in the fall? Thanks!
Mother of 18 year old son
Ileostomy on April 18, 2008

Regular Member

Date Joined Dec 2008
Total Posts : 104
   Posted 4/1/2009 5:39 PM (GMT -6)   
Hey Lew, I had temp ileo surgery Nov.19,08 and my surgeon actually told me i could go back to school a week after i was home. She wrote on my excuse that I could come back then lol of course i didnt bc my stoma was SUPER loud for about 2 weeks which is usual and i didnt wanna be sitting in class and it fart ahh that'd be so embarrassing haha but after it quieted down i felt good enough to go back. And we have elevators going from the ground floor to the 2nd floor so i didnt have to keep walking up and down the stairs. If he has his surgery in late June and goes back in like, late August which is when we go back..i think hell feel good enough to =) I get my ileo off April 29 and graduate this yr May 29 and im walking across the stage =) =) Im super excited!!!
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =]
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"

Regular Member

Date Joined Jul 2007
Total Posts : 280
   Posted 4/3/2009 12:24 AM (GMT -6)   
Hi Lew,
I went back to work 6 weeks after my second of three steps with no problems. It's hard adjusting to the new ostomy because it's a loop and is going constantly, but your son will have plenty of time before school starts. Keeping hydrated is tricky so I would snack on pretzels or chips when I drank to try and keep bulk when adding liquids. Changing the appliance HAD to be done first thing in the morning when the output was slower and eating marshmallows helped slow things down for some reason, I've also heard that peanut butter is good too. Due to the frequency, I did feel more run down, but didn't realize how much until my final takedown when I woke up and instantly felt stronger! Remember that this is also considered a major surgery when constructing the pouch so the same rules apply as the first like not lifting anything over 10lbs for awhile. I hope your son adjusts easily and recovers quickly! :-)

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08

Veteran Member

Date Joined Nov 2006
Total Posts : 552
   Posted 4/3/2009 11:31 AM (GMT -6)   

Hi Lew. Welcome back. I guess your son is doing well. I hope so!
Anyway, Bratcat had a 2-step. Step 1 was done July 3 (created the loop ileostomy and j-pouch). She went back to school Labor Day. She was fine. She was a bit fatigued most of the summer. Partly because of the surgery, partly because she didn't have to push herself to heal faster. She took the summer to recuperate and adjust to the ostomy (which your son already has). She has always kept herself well hydrated but she did have a few lightheaded moments of dehydration. She learned to adjust. Her energy level was low for most of the summer. When she went out with us to the stores, she would use the electric scooter they offer (her suggestion not ours). She did have a dull ache in her upper back for most of the summer. Not sure if it had to do with her ostomy or the surgery itself.

By the time school started, she was pretty good. She still was a bit tired but she pushed to participate in everything. She marched in the homecoming parade (playing her trombone). Her step 2 was November 10. She was out of school for 3 weeks (although part of that was Thanksgiving weekend). She went back full speed and hasn't stopped yet!

I think your son will be fine with surgery in June. He may just have to plan ahead for the first few weeks of school (time it takes to walk across campus, adding extra time to allow for an appliance change in the morning if necessary, etc). Nothing that he can't handle.

--Mom of bratcat (17 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp

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