Posted 4/1/2009 10:54 AM (GMT -7)
The post surgery, post UC fatigue, for me, lasted about one full year. I would nap every day after work. Depending upon how sick you were this could be your problem too. If you are not convinced ask your doctor for a CBC and include a B-12 check. You have to ask for that, it's not usually a part of a standard CBC. Are you getting any regular exercise? If not you should be walking, daily.
Are you taking probiotics? If not you should start and take a good one. Culturelle, FloraQ or Risaquad are all good brands. I believe I have less gas due to probiotics.
Are you eating salty snacks? If you are drinking straight water it might not be enough so either switch to a hydrating beverage, like Vitalyte (not the Gatorade/Powerade crap) or eat more salty snacks to retain fluids.
Are you taking imodium or lomotil to slow your gut transit? Are you eating metamucil wafers for bulking? Have you tried to keep a food log to determine your transit times? This will help you learn what foods move quickly and which ones are slower so you can adjust your diet during this transition phase. Have you eliminated sugar in the interim? Anything with sugar will increase frequency.
Adaption takes about a full year but you should see tiny improvements in 6 week increments.
Go to www.j-pouch.org for more tips.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free