2 Months after takedown, I feel like crap

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Regular Member

Date Joined Mar 2006
Total Posts : 66
   Posted 4/1/2009 12:31 PM (GMT -6)   
Hoping someone can give me advice... I really feel wiped out all the time. Here are the things that are bothering me. Bathroom trips at night, sometimes 2 sometimes 6. Constantly feel fatigued. Gas is almost constant. Im not really packing on the weight as much as i would like. Im taking centrum everyday should I be adding more vitamins? I drink plenty of fluids. I seem to get a light nausea feeling sometimes. This is really depressing me. Please any advice would be greatly appreciated.
Diagnosed with colitis 10 years ago
Polyp found with LGD June 2008
Step 1 October 21st 2008
Step 2 February 10th 2009

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 4/1/2009 12:54 PM (GMT -6)   
The post surgery, post UC fatigue, for me, lasted about one full year. I would nap every day after work. Depending upon how sick you were this could be your problem too. If you are not convinced ask your doctor for a CBC and include a B-12 check. You have to ask for that, it's not usually a part of a standard CBC. Are you getting any regular exercise? If not you should be walking, daily.

Are you taking probiotics? If not you should start and take a good one. Culturelle, FloraQ or Risaquad are all good brands. I believe I have less gas due to probiotics.

Are you eating salty snacks? If you are drinking straight water it might not be enough so either switch to a hydrating beverage, like Vitalyte (not the Gatorade/Powerade crap) or eat more salty snacks to retain fluids.

Are you taking imodium or lomotil to slow your gut transit? Are you eating metamucil wafers for bulking? Have you tried to keep a food log to determine your transit times? This will help you learn what foods move quickly and which ones are slower so you can adjust your diet during this transition phase. Have you eliminated sugar in the interim? Anything with sugar will increase frequency.

Adaption takes about a full year but you should see tiny improvements in 6 week increments.

Go to www.j-pouch.org for more tips.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Feb 2008
Total Posts : 79
   Posted 4/4/2009 10:39 PM (GMT -6)   
You should start to feel much better during the 3rd and 4th month post op. The recovery is very very gradual and you'll only see improvement month to month. I thought initially getting my j-pouch was a mistake because I was experiencing the same thing. I was taking hot baths like 20 times a day and up every hour at night for the first 12 weeks. Do what you can, I use a cream called Calmoseptine (get 2 tubes) after each BM which can be bought off the web or ordered by a drug store, also take a hot bath after each burning BM. Eventually you'll notice the BMs slowing down. I avoided taking imodium and metamucil etc., and now I eat everything again except spicy stuff. Eventually your body will adjust, BMs will become more solid, and you'll be able to sleep longer at night, and eventually your strength will return. It took 3 to 4 months for this to happen for me. Just try tough it out for a few more weeks and you'll be okay again. I still use the cream a few times a week for butt burn, usually after eating something spicy, but it clears up right away. I still wake up about 2 times a night, but it's getting less and less.
Age 0 to 30 - 100% healthy, no meds, no doctor visits, no hospital stays
Oct. 2006 - Symptoms of UC began
3/5/2007 - Diagnosed with UC - Severe Pancolitis
20mg-40mg/day Prednisone, 4.8 g/day Asacol - didn't work at all
10/12/2007 - Steroid Induced Osteoporosis from Prednisone and Anemic
add Actonel (75mgx2 pills/month) and daily iron pills
2/12/2008 - open Subtotal Colectomy with Temporary Ileostomy Surgery
8/05/2008 - Unexpected surgery to remove blockage caused by scar tissue
11/20/2008 - J-Pouch + Reversal Surgery - Now living happily ever after!!!
"When life gives you lemons...make lemonade"

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