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ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 4/2/2009 3:22 AM (GMT -7)   
Hi, how long after people have had their colons removed did it take for their small bowel to settle down.  I had my op 2 weeks and one day ago (subtotal, leaving rectal stump) and my small bowel is really painful when passing gas around etc.  Its shutdown 4 times in the last week where I have needed serveral coffees to get it started again (very painful).  Is this normal?  I have been very careful with diet and not eaten anything that might cause a blockage.  The gas etc is painful when its just gurggling around insde me and not just when it comes through my stoma. 
 
I am also experiencing the sensation that I have been cut off mid pee (men will know what I mean) which is very painful when stuff is moving around my small bowel near my groin.  Is this normal?
 
I am waiting for a doctor to phone me back to get some stronger pain killers at the moment as I am struggling so much.
 
Any feed back to let me know if I am expecting too much too soon would be appreciated.  I had my surgery done keyhole so no big cut down my middle.
 
Many thanks :)

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 4/2/2009 3:31 AM (GMT -7)   
ElliUk-
It will be three weeks tomorrow since i had my colectomy. I haven't had problems with output but I have had a lot of gas and pain around the stoma when stuff is coming out. It is normal to have issues with gas just two weeks out of surgery. I am being really careful about not eating gassy things.
I would definitely call the doctor just to be reassured. I had to get a second round of pain meds just a few days ago. I was taking oxycodone and now am taking hydrocodone which is not as strong, but still helps.

As far as the urine problem-- sorry can't help you there, but I would tell the doctor also.

Good luck
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


Trad
Regular Member


Date Joined Mar 2009
Total Posts : 24
   Posted 4/2/2009 4:02 AM (GMT -7)   
pain pills may block it up

ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 4/2/2009 5:20 AM (GMT -7)   
Thanks for the comments. I have been given some anti inflametry pain meds to help. Hoping that will take the edge off.

I guess I will just have to see how I am getting on in a weeks time. Hopefully there will be a small improvement. Its hard when you have an op to get your life back, I am finding it hard to go through this last bit of suffering as I know once I am through there should be all the rewards and a better life for me - it cant come quickly enough!!

JBlue - thanks - sounds like your going through it along with me at the moment

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/2/2009 6:09 AM (GMT -7)   

JBlue and ElliUK,

Both of you are in the final stages of these rotten diseases.  NOW all you have to do is be patient, let your body recuperate, and start trying new foods once you feel comfortable doing so.

My suggestions for the gas is to really watch the diet.  You will have gas with about anything right now, but keep walking and moving.  Don't sit or lay for too long of periods as moving helps to get the gas out.  You can also lay down and roll slowly from your side to your back to the other side.  This will help to distribute the excess air in your system too, esp if you DON"T feel like walking (waking up in the middle of the night, etc.)

It is good the 2 of you can compare some notes! 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 4/2/2009 6:18 AM (GMT -7)   
Peggy and ElliUK

And I know better- Why did I have black beans last night?? Such a fool. Last night and today I am paying for it.

Today I am taking it easy food wise- soup and toast, jello and lots of water.

Thank you for the reassurances. You are right... Need time to recup effectively. I still have pain and I worry I shouldn't but darn it, I just had my colon removed and part of my small intestine is hanging out of my side.
I still have two more surgeries to go, but at least I know a bit of what to expect next time.

I so appreciate this forum and your help, Peggy.
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 4/2/2009 6:53 AM (GMT -7)   
I think we can eat stuff like beans etc a few months down the line. Coffee worked well from when when I have had problems with thinkgs not going through.

"just had my colon removed and part of my small intestine is hanging out of my side" - when you put it like that we are doing pretty good! Maybe we should give our selves a pat on the back for being brave and getting to where we are. It took me a long time living with UC to make the choice for surgery - over 10 years. Peggy you are right, I guess after 10 years a few more weeks wont hurt!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/2/2009 6:55 AM (GMT -7)   
lol i love that, " I shouldn't but darn it, I just had my colon removed and part of my small intestine is hanging out of my side. "

Yeah def normal for pain this soon out and the painkillers probbay are stopping you up some.
You will start to feel better once you can get off them, i know thats weird, lol.

Try some gas-x and also laying on your left side will help with the gas

ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 4/2/2009 7:09 AM (GMT -7)   
Hi Summerstorm
I forgot to say thanks for your tip on the gel tablets for my bag. I saw my stoma nurse this week and she gave me some free samples - would never had known to ask if you didnt reply to another one of my posts!

Gas-X - is this an american product, I have not heard of this before.
Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions
No Joy!
 
Colon Removed 18 March 1:30pm!
Ileostomy
Option for Jpouch but have not made my mind up yet!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/2/2009 9:53 AM (GMT -7)   
gas-x is a med its called simethicone is the actual name

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/2/2009 7:22 PM (GMT -7)   
Elli.. let me know how you like the gel tablets... I've thought about using them, esp when we go out to dinner... between the time we leave the restaurant and when we arrive at home, I tend to fill up pretty quickly.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/2/2009 8:39 PM (GMT -7)   
wow i just checked andiactually spelled that right!

peggy those tabs are awesome, BUT they can make it hard to get the output out.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/2/2009 9:02 PM (GMT -7)   
summerstorm said...

peggy those tabs are awesome, BUT they can make it hard to get the output out.
 
 
Summer -- what was it that someone recommended putting inside of the pouch to make things slide out easier???  Was it aerosol cooking spray??  I just can't remember, do you?  I bet it gets sticky coming out of the tail, right?  Never used them but may give them a try - selected times only probably for me.  Less is better for my lifestyle.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 4/3/2009 2:22 AM (GMT -7)   
I havent used the gel tablets yet - still at home recovering so not been in a situation when they have been needed. It is the sort of thing for what you just said. I imagine going to a lunch time meeting or something like that where I would prefer to be a bit more solid until I can get to a toilet. I like the idea of having that extra safty net. Eating out in a restaurant is something which I have avoided for years! I am looking forward in the coming months to be able to sit out at a table and be relaxed about eating out with friends or work events.

Going back to my comment at the top about still feeling bad after 2 weeks. I have a prescription from the doctor for something called Diclofenac Sodium. WOW!! What a diference!! I think the people at the hospital send you home with a weeks worth of stuff without giving too much thought for what happens on week 2 - or maybethey expect you to follow up with your own doctors. All I know is I feel a lot better after taking some anti inflamatory pain killers.
Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions
No Joy!
 
Colon Removed 18 March 1:30pm!
Ileostomy
Option for Jpouch but have not made my mind up yet!


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 4/3/2009 2:45 AM (GMT -7)   
Hey Guys,
Im just on 4 weeks post op and I can tell you it does get better as the days go by. I feel incredible, the best I have felt in years and I know you will as well. I just got a sample of those gas pills as well and going to try the first one tomorrow cause Im off to a BBQ with some friends, so I figured that would be a good time to trial one. I must have been one of the lucky ones cause I didnt need any pain relief for more than a week after surgery and that was including getting an infection 3 days after the ileostomy and having to go back into surgery to have the infection drained. Hope u are feeling better soon. take care

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/3/2009 8:10 AM (GMT -7)   
peggy-someone did say somehting about ccooking spray, but i just dont knwo about that, lol. I ony use the tabs when i am going out somewhere that i dont want to have to empty as often, or if i have eaten something that makes me really liquidy, like bbq. It helps a little with smell too.
It makes it like the inside of a diaper when its wet.
Elli that is usually when i use them, going out to something where i dont want to have to deal with it as much. The liquid will sink right down and pool up, but the tabs make it kind of spread more evenly. Its really hard to explain, lol.

And yes it does get better as the time goes by, i'mglad you got some meds that are helping.
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