think I know what my stoma problem is: it goes in like navel

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tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 4/3/2009 6:39 AM (GMT -7)   
thought I'd start new thread since i think I know what problem is with my leaking: my stoma is flush with skin when I'm lying down to put on bag, but when I'm up and about, it goes in like my navel! That is why I can't get any thing to work

Any one every heard of this kind of problem?

Is there a solution? another surgery perhaps.

I'm beginning to think I will never get bag to hold

Thanks

kimlin08
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 4/3/2009 8:06 AM (GMT -7)   
I am three months out from colostomy after emergency surgery and parititnus....My stoma is starting to do the some....going to my family dr in an hour and hope for a answerr..will tell u when i get back what he said....
Maggie in tennessee....coping


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/3/2009 8:20 AM (GMT -7)   
call your surgeon...you family doc prob won't be able to do anything with it...I would leave that to the specialist!!

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 4/3/2009 9:27 AM (GMT -7)   
Ohio, I called and left message with surgeon's nurse. I'm seeing my family MD mainly for my depression, anxiety and inablilty to fall asleep.

Yes, Kim, I would be interested in what your doctor says.

I talked with my ostomy nurse. She said sometimes pts will need a revision surgery to stoma or whatever they do to fix problem. She does not think I need that yet but glad I left message for surgeon. She's ordering convexity bags from ConvaTec since I have not tried theirs. she wants to see me Tues. She is always optimistic but tells me the truth/reality abut situation.

I found some sample Hollister convexity bags!! I put one on an hr ago.

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 4/3/2009 3:34 PM (GMT -7)   
My stoma does the same thing..... if is almost flesh with my skin..... my ET nurse said that with that u need the convexity that is flexable....now I have been using hollister but got some coloplast samples....and boy do I like them. Im not itching....where the cloth part was or anything.... now, we will see if it holds....I went through two hollisters today before putting this one on. I havent tried convatec yet.

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 4/3/2009 5:19 PM (GMT -7)   
Wow, I had no idea that leakage could be a problem. Nevertheless, I have had a Hollister convexity on for nine hrs and I am so happy and relieved! I am beginning to relax. I have Coloplast and ConvaTec samples on the way. I hear Coloplast samples take forever to arrive.

Sorry you are going thru this too.

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 4/3/2009 6:20 PM (GMT -7)   
They do and they only send u two......I got mine from my ET nurse......they are great at giving me samples. This one has been on for 10 hours as well....... wish i could order these real quickly as this is the only one I have.

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 4/4/2009 5:50 AM (GMT -7)   
I currently do not have a stoma but had a temporary colostomy years ago. Since I have multiple bm's each day my colon surgeon claims my life would be great improved by having a permanent inverted colostomy, one that I would irrigate each day. Wearing an AM Patch in between irrigations (fancy way of saying giving your ostomy an enema each day).

Well, we have LOUSY insurance, we might as well not even have it. My husband is self employed and he skipped a pay check last week to make payroll. His employees are down to 4 day work weeks right now. So needless to say our budget is extremely tight. There's no way I could even consider surgery at this point, let alone buy expensive irrigation equipment.

But as I read topics such as this one, I have to gently suggest that you may consider irrigation. My colon surgeon told me irrigation is so new, many ET nurses and doctors do not even suggest it to patients. But I have read on another colon/ostomy board of patients who faithfully irrigate every 24 or 48 hours and think this is the way to go.

Perhaps down the road when the economy picks up and I'm sick to death of spending hours in the bathroom each day, I might consider an inverted colostomy and try irrigation.

It may be worth at least asking your doctor if this would be an option for you? You would avoid more surgery also.

Wishing you better days ahead.

Mary
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!


ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 4/4/2009 7:05 AM (GMT -7)   
Tkc, how are you doing......is your bag still on. Just wanted to check in on you and see how things were going...

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 4/11/2009 1:33 PM (GMT -7)   
I'm doing a lot better! Just saw your note...for some reason email is not notifying me when I get replies. So I will check more often.

Yes, country bear, I have had a good week. See my note of today (Sat 11th) about how to use the eakin seals.

How are you doing? How long have you been able to keep appliance on? What an experience, huh?

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 4/11/2009 5:56 PM (GMT -7)   
I am using coloplast convexity one piece wafers with the whole eakin seal and I am now lasting 4 days..... Im in heaven. I am even back at the gym and back to swimming. For once I feel as though I am getting my life back.

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 4/11/2009 6:05 PM (GMT -7)   
Amazing, CountryBear!...and congratulations.

How do you keep the appliance on in pool?? I'm hesitant to take shower, and wrap the bag in plastic.

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 4/11/2009 8:14 PM (GMT -7)   
honestly I never tried it until now..... but these stick so well. I blowed dryed it a bit afterwards. If you havent seen the coloplast. They are plastic instead of cloth and my wafer is flexible so it just moves along with my skin.

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 4/12/2009 4:01 PM (GMT -7)   
When my nurse gets back from Easter week vacation, I think I will ask her to order me some Coloplast one piece convexity bags. I'm surprised I don't have any here. I wonder if I could call them myself and ask for samples?

This coming week is going to be busy from Mon thru Thurs. On Tues I travel three hrs to have dye up my butt to see if my j pouch is ok. I hope my appliance holds well. It's still kinda scary for me to go out, esp four days in a row!

You are doing so well, country bear. You are an inspiration.

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 4/12/2009 4:59 PM (GMT -7)   
Just ordered Coloplast via website. Got one piece shallow convexity.

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 4/12/2009 5:04 PM (GMT -7)   
I love mine...... Im getting ready to take a shower and take mine off just because I go back to work tomorrow but it would have been 5 days at 930 in the morning. I dont itch with them like i did the others. I just love them.

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 4/12/2009 5:24 PM (GMT -7)   
I just can't believe that I will ever go five days, but never thought I would go 80 hrs.

Yes, I itch. I hate that. I hope Coloplast send sample soon. I told them about your recommendation on a forum: no name of course, just recommendation from a poster.
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