Ok, you all have done a TREMENDOUS job answering my questions. I still cannot express how thankful I am to have such an understanding community. I hopped over here because I was *lost* and everyone embraced me and I never have felt more comfortable before!
Here is my *list* of questions....can you help add to them? As I'm going through my day.. I'm reminded of a few more. I swear I need to leave a notepad at my bedside as I think of a ton just before bed!
Questions for the doctor...
- Post surgery restrictions (cleaning, lifting, sports, etc)? How long?
How long off work?
location – right or left? Reasoning?
What kind of incision? How big?
Will I have an ostomy nurse to help with bag changes until comfortable?
How long is the surgery?
What does the opening look like?
How does the hole stay sealed around the bag?
How long will I stay under post-surgery?
Will I receive supplies in the hospital? Enough to go home for how long?
How is showering with an ostomy bag? Will I required to wait for a certain time period post surgery?
How long do you go without eating? What’s the gradual process back to food?
How long is the prep? What is it like?
- Age: 26
Crohn's - Dx Nov 05
Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira. Onto Tsyabri. If I fail that, total colectomy.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 20 months old