I want to buy some products like aerosol adhesive over the web?

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schrek-chewbacca hunk
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Date Joined Jun 2005
Total Posts : 2666
   Posted 4/6/2009 8:34 AM (GMT -6)   
Where do you shop  I would feel better having some options before leaving the hospital.  I go in next week.  And I am sorry, I am very scared - even the xanax isn't working.
Some info and maybe a group hug might help at this point - and I am being very serious.  I don't know how I am going to walk into that hospital at 5AM.
love to all

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 4/6/2009 8:40 AM (GMT -6)   

It's been a while since I had an ostomy but as I recall the hospital sent me home with enough supplies to get by for a week. Once home an ET nurse would provide home visits to evaluate the stoma and recommend new appliances based on the changing shape. I don't think you should purchase any supplies in advance as you may find you don't need them or your nurse will offer you an alternative that is better for your particular case.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Jan 2008
Total Posts : 381
   Posted 4/6/2009 8:54 AM (GMT -6)   

Which part of the surgery/recovery are you most fearful of?

I know exactly how you feel and my heart goes out to you. I had a harder time once I got home from the hospital , actually. IT has only been 3 weeks and 3 days since my surgery and I am telling you that everyday I feel a little better.

Even though surgery was imminent, I went in to see the surgeon on Wed. and he said I was in such bad shape he admitted me in the hospital on the spot and scheduled the surgery for two days later. I spent two days in the hospital before I had the surgery. I think I was in shock it was really happening.

Things that did help a bit:
I started journaling to get my feelngs down on paper. I would try to get as distracted as possible. I know that is easier said than done. Go out- walk if you can.. Go to the movies, walk in the mall... read a trashy book. Rent comedies...
Spend time with your loved ones.

As far as supplies, you will be given supplies and you really don't know what you need at this point. I wouldn't buy anything yet.
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 4/6/2009 11:01 AM (GMT -6)   
*give Bob the biggest hug ever!*

I shop through edgepark.com but it will depend on where your insurance makes you go.

the thing to do right now is ccall and get samples from every place.
the hosptial will give you some stuff to take home, its not what you will use probably cause its not really that great.
The ET nurse will help you find out what you need. I got lucky and the first thign i tried is what i still use.
Once you order your stuff from the companies it comes really realy quickly. There are alot of things that you will probably be told to order that you will never use, or things that you will look at and think, oh i gotta have that, but you wont ever use it. I have so much junk like that, lol.

Writing things down is an awesome way to get feelings out. I was terrified the day before surgery but i made it.

You will be able to walk into that hosptial in the morning because you will know that when you walk out you will be able to be a better husband and friend because you will be HEALTHY!!!! You will walk in because you know when you wake up you will be CURED!!! Think of all the little tiny thigns that you are gonna get to do not that you couldnt do before and each of those will get you one step closer!

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 4/6/2009 11:12 AM (GMT -6)   
I'd wait on asking for supplies...your don't know the size, shape or type of wafer needed yet...If it makes you feel better tho call and get ones that you have to cut to size...that way they'll fit what you need.

I also order from Edgepark, but that is only because my insurance is covered there and they are a local company for me...You could ask your insurance who they cover before you go in so your ET nurse can write a prescription to them and she'll also place your first order (in addition to what you'll take home).

Hang on, you'll be okay!
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