Pepperann ~ Thanks for the reply, I feel better knowing there is someone out there willing to share with me. I'm assuming then that you do not have an end ileo, but a loop, has that ever been a problem for you? Do you have alot of mucus discharge from your pouch and if so does it ever slow down. I have what seems like mass amounts of it daily and as time goes on it seems more and more difficult for me to control and hold it in.
Thanks again for your reply.
33 yrs old, Mama to my darling daughter (7yrs) and my little boy (3 yrs)
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Antibiotics Prednisone Imuran 100mg
Double dose of Remicade every 4 wks STOPPED BEING EFFECTIVE
Had a total colectomy Aug 1st 2008 2 step J-pouch, disconnected and reconnected
2 takedown sugeries, infections, leaks, multiple drains
Will be keeping my loop ileostomy, will not be removing disfunctioning pouch at this time