End reversal timing

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Miss UK
Regular Member

Date Joined Oct 2007
Total Posts : 128
   Posted 4/9/2009 4:36 PM (GMT -6)   
Hello all I've been searching for answers but will just come out and ask:
I have an end ileostomy since Nov 2008 following a resection due to fistula to the bladder.  I was promised the reversal (not an internal pouch) 3 months following.  I've just got my dates after endless nights of worrying and now it's not going to be until July meaning I will have had the ileostomy for 8 months.
My main question is does it make any difference to the recovery as to how long you've had the ileostomy for?
If anyone wants to tell me I will be perfectly fine within 6 weeks after then feel free :)  I'm having my main incision re-opened will this make things much harder? 
Is it mainly people with internal pouches who suffer the dreaded diorreah for so long or does it apply to all reversals?
Oh any snippet of information would be so much appreciated.
Thank you, you are all so wonderful!
36 year old single mum to a 2.5 year old son
Suspected Crohns when 10 years ago had a very painful rectal abscess
Diagnosed with Crohns desease properly 6 years ago
2008 developed fistula bowel perforated onto bladder resulting in temporary ileostomy
hopefully a reversal around March 2009.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 4/9/2009 4:57 PM (GMT -6)   
I have an internal pouch (J) and don't have diarrhea! It's a common misconception.

You will have a second recovery with your incision being reopened. Provided you have no surgical complications a six week recovery sounds about right.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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