Second Opinion

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Regular Member

Date Joined Mar 2009
Total Posts : 192
   Posted 4/11/2009 8:11 PM (GMT -6)   
Does anyone know how you can check on your doctor. I want to see if anyone had complaints on him. After two years and two surgeries, he is now telling me that I have crohn's. I dont understand and now what does this mean for me. I am happy that this explains the fistulas that I have been having. Is it the doctor? Am I being to harsh or should I go for a second opinion.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 4/11/2009 9:08 PM (GMT -6)   

I am assuming your original diagnosis was UC and you have now, after several surgeries, been diagnosed with Crohn's.  This, sadly, does happen.  There are no definitive tests to distinguish UC from Crohn's and it does happen that UC patients will have surgery and then learn months or years later that there diagnosis was Crohn's.   You can meet several others this has happened to at  There are sevearl people there who have been able to keep their jpouch and manage their Crohn's symptoms with drugs and also just as many who have opted for a permanent ileostomy. 



dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 4/11/2009 9:43 PM (GMT -6)   

My diagnosis has always been Crohn's, but I never had it in the small intestine, so I asked my GI one day if I it's possible that I actually had UC (because if I did, I'd be cured through surgery). She said 'No' because I had fistulas, and that is a symptom of Crohn's and not UC.

So, what this doctor told you does make sense. However, if you want to research complaints about him, you can do that through the American Medical Association (AMA).

Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 4/12/2009 9:28 PM (GMT -6)   
There is a fine line between the two, but once the fistula presented itself, that sealed the Crohn's's a personal thing, but if you are questioning the doc's ability to help you, you might want to get a second opinion and look for one you can have confidence in. I'd suggest finding one associated with a teaching hospital if you have one in your area.
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