Last Tuesday I had the first surgery to remove my disgusting colon and rectum and create the J-pouch. I've recovered very quickly and the docs and nurses are all surprised!!!
I was discharged yesterday and finally home sweet home
I wont' lie to you, the pain is immense and getting used to this bag is quite a challenge. The pain meds do work, but there is still a lot of discomfort getting in and out of bed. I'm hoping to be pain free in a week and back to normal!
Couple of things ...
1. normal to have some leakage even though the anus is not "working" ?
2. I still feel like I have to go to the bathroom from down there but obviously there is nothing that can come out.
3. My bladder seems to be directly related to how much pain my stitches give me ... when I'm relieving myself, my stitches HURT !!!
4. The output in the bag gets hot hot hot !!!!!! Anyone know if it's ok to cover the bag or have any suggestions, tricks ??
Thanks to everyone for your support, it's been an exciting painful week!!