When I came home from the hospital, up to last week, I was wearing Hollister mini pouches, which I liked because are small and fit in my underwear. The downside to them is that it seemed like I had to empty them all the time. I ordered some samples of the regular sized pouches, which I am currently wearing, and like because I can wait longer between emptying. My question to all of you who wear longer pouches is how do you deal with the pouch hanging out of your underwear? Do you let it dangle down on your leg, or do you tuck it up somehow? The style I am using has a velcro closure, and I worry that if I let it hang down the velcro will get bumped and let things flow. One person told me she wears 2 pairs of underwear and tucks the tail end up in between the two pairs. I have tried this and it seems OK, but sometimes it seems too cumbersome. Please share your tricks of the trade! Thanks.
scheduled for permanent ileostomy surgery 2/19
proctocolectomy with permanent ileostomy 2/19
tried asacol, rowasa, remicade, humira
40 mgs.10 mgs 5mgs. prednisone, 20mgs and tapering every ten days
51 years young