What to expect post-op for restorative proctocolectomy?

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New Member

Date Joined Apr 2009
Total Posts : 2
   Posted 4/13/2009 11:17 AM (GMT -7)   
My husband is having this surgery and I haven't gone to any of his pre-op doctor's appointments (his choice) and have only read the paperwork he brought home after his last appointment.  The first leg of his journey is scheduled in early May.  In filling out my own FMLA paperwork for my job, it asks how much time I anticipate taking off, and I feel so woefully ignorant.  Obviously I'll take off the day-of the surgery and possibly the day after, but beyond taking off the day he gets discharged from the hospital, I don't know what to expect, I'm not sure if he does, either.  I'm trying to read through the forums without asking all of the questions that pop in my head but I'm still figuring out my way around here.  Thanks so much for any information anyone can give me, and any after-care tips would be greatly appreciated as well.  I'm compiling a document to keep with me for reference at all times and to jot down questions and look up online. 

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 4/13/2009 4:16 PM (GMT -7)   
Okay, my original post didn't make it...I'm gonna try again!!

Welcome to the forum! It really depends on each person as to how much help they'll need at home...Personally, I didn't bounce back as quick as I thought I would (and I've had many surgeries to base my recovery on!!) so I was kind of surprised by the 6 weeks I was useless. But, many on here have had a much easier time! It will also depend on if he's having an open or lapro surgery. The lapro is MUCH easier...Was his dx Crohn's or UC?

You'll want to have a heating pad on hand at home...back pain is a biggie and the heating pad does help with that (the heat should NEVER be put on an incision tho). Fluids and salty pretzel like snacks are good...I did the peanut butter crackers like they were going out of style:) And, pants that are loose around the middle help in case he has an open surgery w/staples or a drain in addition to the appliance.

I am sure others will be along...BUT don't be shy, ask your questions! That's what we are here for:)

New Member

Date Joined Apr 2009
Total Posts : 2
   Posted 4/13/2009 4:46 PM (GMT -7)   
Thanks very much for your reply. He was dx'd with UC in 2001. As far as open or laporoscopic, I BELIEVE it's open (in telling me about what the incision will look like, it sounds much more invasive than lapro but I could be wrong about that) but didn't think to ask that question, either! He's meeting with an ostomy nurse prior to and after the surgery, so I'm definitely planning on attending that appointment, even though he says it's not necessary, I don't think either one of us really knows what to expect afterwards. Thanks very much about the advice on the heating pad, I'll definitely get that. I was also reading up on what he can/should eat after the surgery and it appears that it's pretty much what he can eat now minus the fiber and the spice, is that correct? I got the diet information off of j-pouch.org.
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