Question's to ask Dr.?

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Regular Member

Date Joined Feb 2005
Total Posts : 421
   Posted 4/14/2009 12:28 PM (GMT -7)   
Hi Everyone,
Im a Crohnie who is going in to see the surgeon today to speak about a possible permanent ileo. Im not a candidate for a colon. My rectal muscles are shot (too many surgeries/fistula's/abcess's) and I have no control. I am just wondering what sort of question's should I be asking??? Anything would be a great help!!
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 4/14/2009 12:56 PM (GMT -7)   
a canidate for a colon? do you mean a j-pouch?

If you are gonna have a perm ileo things you want to ask about are
does the surgeron perform lapro
time off work
pain meds
recovery time
what meds you will have to take afterwards

there are more but i cant think of any other ones right now!

good luck! and i hope you have a good consult! and congrats for being on your way to being healthy!

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 4/14/2009 4:52 PM (GMT -7)   

Hi Allison,

Welcome to our forum. If you're ready to have surgery, I would ask the doctor if he or she can do it laproscopically, for a pain pump after surgery, for a private room in the hospital, and for an Ostomy Nurse to meet with you before surgery to mark the stoma site and after surgery to show you how to change the wafer/appliance.

Good luck with your appointment, and let us know how it goes! If you have any questions about what it's like to be Crohn's-free and have a permanent ileostomy, please feel free to ask.

P.S. - it's all good! :-)

Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 4/14/2009 5:12 PM (GMT -7)   
will you have a proctocolectomy (removal of colon/rectum)? If you are going for the perm ileo and have fistulas make sure they take it need to have two surgeries.

with 30+ surgeries you probably won't be a candidate for lapro (if they were abdominal), but it's worth asking!

Post Edited (OHIO76) : 4/14/2009 6:16:04 PM (GMT-6)

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