New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 4/20/2009 8:29 PM (GMT -7)   
Hi All,
Just thought i would update u on my first follow up visit with the colorectal surgeon after my ileostomy surgery on the 4th march. I was quietly hoping on having a reversal but he says its definately not an option for me since I still have active disease in the rectum and anus and would very likely go back to running to the toilet several times a day, so looks like I have to make the most of my new life. I am very happy to be pain free finally and its great to be able to actually go out without  having an accident. But also a part of me also feels a bit sad. I know u probably think im crazy! Although Im sure u have all been through these emotions too. I also just split from my boyfriend of 2 years so i guess Im probably a little more emotional than usual lol. take care all

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/21/2009 1:09 AM (GMT -7)   
Hi Andorable

Thanks for the update. Hope you are feeling much better today. Did you coloectal surgeon consider the option of giving you a J pouch. I think it may be possible by removing the rectum, and just keeping the sphincter muscles to help in connecting the pouch. I am sorry to hear about the emotional set back. I am sure you would come out of that very soon. It is not you, but your boyfriend's loss, as he has lost a good friend like you.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/21/2009 3:52 AM (GMT -7)   
andorable--sorry to hear your news:( Do your Docs have any plans to get your disease under control? As a fellow sufferer in those areas, I would suggest either getting things under control or having them removed.

Like PSA mentioned, it's his loss! I know that is easier when it's not your heart that's broken, but in time you'll know you are better off.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/21/2009 5:35 AM (GMT -7)   
Andorable,

Just wanted you to know that I am sending my thoughts and (((hugs))) to you. Don't be hard on yourself. You are allowed to be emotional but know that we are here for you as well, anytime.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 4/21/2009 6:10 PM (GMT -7)   
Thanks guys I appreciate your kind words. Ohio, I am off to see my GI today and I am currently on 5 mgs of pred been weaning off since surgery, so I guess I will see what he says today. PSA Delhi, my surgeon did mention the J Pouch but he says that wouldnt work for me since one of my problems before I had the surgery was faecal incontinence so he said I would most likely continue to have those problems. Hope you are all well, take care

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/22/2009 4:14 AM (GMT -7)   
Faecal Incontinence: Andorable you mean to say that your sphincter muscles, which control the motions are affected. I would still suggest you to please consult some other GI. Why don't you take opinion from Cleavland. I have heard it is one of the best in the world. My concern for you is that if you could get the J pouch, it would make the life much simpler.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 4/22/2009 6:53 AM (GMT -7)   
Hey PSA Delhi, I live in Australia so Cleveland is not an option for me. The surgeon said my sphincter muscles werent strong enough and I have active disease in my rectum and anus. Im not sure but I think theres a difference in whether its CD or UC as to whether a J pouch is an option as well, and its definately CD that I have. Thank you for your concerns and I do agree I need to look at all options if there are anymore for me. I need to do some research about J Pouches as well cause I dont know much about them at all. Thanks so much for your help :-)

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/22/2009 7:41 AM (GMT -7)   
You may have a look at jpouch.org, for more information on J pouches. Should you need any further information or assistance from me, please feel free to get back. Take care.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/22/2009 7:50 AM (GMT -7)   
Hey Adorable, I remember having seen some research paper on CD and UC from Australia. They had found out the cause (the particular bacteria) that causes these diseases. Infact, it was in 1991, they suggested that Fenugreek Seeds are quite helpful in treating CD.

In another research carried out during 2005-2006, the particular parasite causing Crohns and IBD has been located and the cure for the same is not far. So don't worry. There is light at the end of tunnel.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 10, 2017 5:35 PM (GMT -7)
There are a total of 2,903,790 posts in 318,684 threads.
View Active Threads


Who's Online
This forum has 158094 registered members. Please welcome our newest member, 14 nurse.
354 Guest(s), 6 Registered Member(s) are currently online.  Details
john4803, ArtAngel, emotions, Twingirls, TomC1962, straydog