I know you and I have almost identical stories, and I too did trial and error. I do not have a colon, but I am sure you read ended uo with a could have been fatal bowel obstruction and now have a loop ileostomy. The first week foe me was awful. I will not lie, but I had emergency surgery and did nothave the time you have had to plan for it. I feel better, look better, have color, no pain (well except where my abscess and inscision since I am only 10 days post-op) but this is controlled with vicodin as needed. I have n=been in the hospital most of this month and think I may be going home today.....I am doing better with the ileo, but I am still looking into the k-pouch and having a consultation with Dr. Remzi for a continent ileostomy. I am only 28 and the hardest part for me has been my body image with the bag and I want to see if I can help this. I am married and have the most wonderful husband who if I asked would empty my bag!!!! I wish you the best in your decisions.....you just follow your heart.
Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Dx Anismus- Second opinion U oF M
Recommended at home biofeedback for 2 months, BUT before I could
Admitted with Small Bowel Obsruction April 4, 2009.
Suggested ileostomy April 12 with no resolution.
Loop ileostomy April 13, 2009 and still recovering.
Right abdominal abscess and hospitlilization April 21
Hoping for consulation to Cleveland Clinic for K-pouch and U of M for re-evaluation.
"The Greatest Healing Therapy is Friendship and Love"