I've been posting on the UC board for a while. Well, I had a colonoscopy yesterday and was told that I now have two options due to how bad my colon looks. The first is to start taking Immuran in combination with remicade (I've been on remicade since Aug). But the first thing he said about that was it greatly increases my risk of blood cancer. Not cool with me. My other option is the j-pouch surgery. So I find myself scanning the threads on this board, and I have some questions. I hope my questions aren't too redundant as I'm sure newbies post questions all of the time...
Here are my questions....
How long will I be in the hospital for each surgery (typically of course, I know complications could make it longer)?
I have an office job, so I live in a cubical for 8 hours a day. How soon after each surgery do you think I'll be able to return to work?
After the first surgery, once I have the temp ileo (is that what its called? I'm so new to this.), will I be able to enjoy summer activities like swimming?
How soon after sugery were you able to eat normal foods that you could not eat beforehand?
I have IBS as well - do you think I will still have IBS issues or will the surgery take care of that too? What about lactose intollerance?
I feel so knowledgable about UC after having it for the last 2 1/2 years almost. But I feel clueless about the surgery and what to excpect. So I truly appreciate your help.
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda ( 2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg (Aug 2008), increased to 7.5mg/kg (March 2009), increased to 10mg/kg and increased to every 6 weeks (April 2009) - 7 infusions so far, next infusion on 5/28 continuing every 6 weeks; Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex
w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis, Probiotic Align
Spinach and Sunflower seed butter diet (starting 3/21/09) (will try again once I can eat normally again)
Current Status: April, 2009 - suffering another flare-up :(