red, the bag isnt as bad as u probably fear it is. Im 26, just had surgery in January, and if u read my past post u will see how anti surgery i was. I finally started moving my bowels thru the wrong part and couldnt put it off any longer. My ostomy is temporary, but its been ok. Not nearly as bad as i expected. U will be able to wear the same clothes. I didnt believe it, but i can. And they even fit! I'd lost soo much weight when i was sick that none of my clothes fit well, thats no longer a problem. Ive been on prednisone and it was the worst. The longer some people r on it, the worse the side effects for some. I have what ever that genetic thing is that makes u react to the 6mp, so they couldnt keep me on it.
Ur doc is right about one thing, that surgery ideally should be your decision. So while im not encouraging u to have it, I do suggest that if you think this is something ur going to end up needing either way in the long run, that you dont wait until ur no longer able to decide and/or prepare. I hope u find relief soon
bebby, im sorry that you cant keep a bag on. Whats the problem? is it leaking? is it not sticking? what products are u using and where is ur ostomy nurse? Lastly, at 84 u should definitely be eligible for home aid. Have u checked into this? Please respond. I hate to hear ur struggling so when u dont have to.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Worst year ever!
"For God has not given us the spirit of fear....."
Where does mine come from?!
Temp Ileostomy performed 1/29/08
Healingwell.com has been my Godsend...Thank you