Yea!!! You are going to be better!!! : ) The difference of our situations is that I had UC and was guaranteed the cure, but you're still kind of the danger zone in the sense that you may still have issues after the fact. HOWEVER, there are many people with CD that have no other problems after the surgery.
My advice would be to make a pros and cons list about the surgery and your life. My son and family were my main motivation to get better...that and the pain...no treatments worked and the constant pain thing just isn't my style. : ) I opted for the proctocolectomy and permanent ileo, and have NEVER regretted it...except for maybe a few minutes during my blockage, that sucked. Broccoli too early isn't a good idea...and make sure that when you do eat it, it's super mushy and just the flowery part. : )
Also, when you go to the hospital go ahead and bring a little bottle of the Hollister M9 odor eliminator. I was able to eat food almost immediately and it was AWESOME!!! I also chowed down on hard candies and blow pops, which was what was suggested by some of the amazing people from here. I asked tons of questions before my surgery and was given great advice. This was all around the start of Feb., but they were bumped up about a month or so ago if you wanted to back track. : )
Ooo...also bring your own pillow and blanket from home. It helped ease my homesickness. I am amazed with how many people are able to chit chat online during their stay b/c I was totally druggy and not able to focus on anything. So, trashy tabloid mags were my time passer. I was able reread them at least twice b/c I forgot what I read the first time. : )
You really are going to have such an amazing life after the surgery. The first month was emotional in a way b/c it was an adjustment, but now that it's been a few months I just cannot believe how great life is! I am exhausted just b/c we are always on the go! I told my husband that I am staying home and going no where this next Friday, as it is a state holiday and we are off work. I am NOT leaving town, I am NOT putting on my face or doing my hair...in fact, I think I'm going to call that my Mother's Day and sleep in. : ) My husband works Sundays so I'll be up early with our son and doing my daily duties...so I think Friday should be my 'Mother's Day'. Yes...executive decision by me. : )
Anyway, continue asking and expressing your thoughts and feelings b/c everyone here is AWESOME!!! I could not have made it through my experience without this forum.
: ) Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open." -Unknown