this is a stupid thing for me to worry about

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summerstorm
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Date Joined Aug 2006
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   Posted 5/2/2009 11:03 AM (GMT -7)   
I know logically that this cant happen, but i keep having these dreams that somehow my bottom opens back up and everything reconnects and i start going the regular way again!
And am sick again and its sooo much worse than before.
 
Now i know thats stupid, and couldnt happen, but i just wake up from those dreams terrified and then i worry about it for hours afterwards!
 
Someone either tell me, thats ok to worry about, or tell me to get myself in a rubber room asap!

flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 5/2/2009 2:44 PM (GMT -7)   
You went through a lot of pain and suffering with UC, so it's just the bad memories coming back in your dreams. They'll probably go away the more you fill your life with good memories. So, get out there and have some fun! (no rubber room needed... yet!) tongue
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


summerstorm
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Date Joined Aug 2006
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   Posted 5/2/2009 7:55 PM (GMT -7)   
thanks cece!!! Although i still my need the rubber room, if for nothing else than my own safety, i just keep getting hurt, lol

andorable
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Date Joined Jun 2005
Total Posts : 981
   Posted 5/2/2009 8:48 PM (GMT -7)   
Hey Summer, it would be nice to go the regular way again without the pain we used to have and just simply be normal again, but not going to happen that way unfortunately. I do understand the weird dreams tho I have had several since my surgery and wake up checking if my bag is still in place. Definately no rubber room yet otherwise I would have to admitt I need one too lol

vette guy
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Date Joined Nov 2006
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   Posted 5/3/2009 11:38 PM (GMT -7)   
andorable said...
Hey Summer, it would be nice to go the regular way again without the pain we used to have and just simply be normal again, but not going to happen that way unfortunately. I do understand the weird dreams tho I have had several since my surgery and wake up checking if my bag is still in place. Definately no rubber room yet otherwise I would have to admitt I need one too lol
Who says you're not normal????   You are a perfectly normal person who happens to have an ostomy!!  Don't EVER let yourself forget that!!! And, for what it's worth.....I just came back from the airport, and saw a lot of "normal" people I wouldn't change places with if my life depended on it. It's like a leper colony over there.

Post Edited (vette guy) : 5/4/2009 12:43:06 AM (GMT-6)


andorable
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Date Joined Jun 2005
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   Posted 5/4/2009 4:49 AM (GMT -7)   
Sorry vette guy I worded that wrong didnt mean to say we arent normal, in my defence Ive only been an ostomate for no more than 8 weeks and am still coming to terms with it. So please dont be so sensitive, sure didnt want to rub u the wrong way

hsmom
Regular Member


Date Joined Oct 2004
Total Posts : 35
   Posted 5/4/2009 9:06 AM (GMT -7)   
I have had my ostomy for 7 weeks and the other day I told my husband that I was trying to be a normal person again and he said" you are normal and that your old "normal" wasn't working. So accept that your new normal is much better." I feel better every day and am accepting it better every day. I still check it many times thru the night though and have dreams that I am passing gas the "old" way. Am liking the "new" way.

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 5/4/2009 11:45 AM (GMT -7)   
lol i like what your dH had to say,although it confused me the first time i read it,lol

yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 5/4/2009 11:57 AM (GMT -7)   
I was a runner all my life until a bi-lateral hip replacement in 2001. I still have dreams of running occasionally. It's usually dreams of running through a wooded hiking trail which I never did but in my dreams I always think wow I can run again.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony


hsmom
Regular Member


Date Joined Oct 2004
Total Posts : 35
   Posted 5/4/2009 12:39 PM (GMT -7)   
Sorry summerstorm, I have trouble saying things how they were said. I think it is this fibro fog I am in sometimes.
Anyhow, I got to bowl with my team this past week for the first time after surgury so that made me feel "normal" again and got to go shopping for 2 hours yesterday without a care whether there was a bathroom nearby or not. Yeahhhhhhhh

vette guy
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Date Joined Nov 2006
Total Posts : 650
   Posted 5/4/2009 2:04 PM (GMT -7)   
andorable said...
Sorry vette guy I worded that wrong didnt mean to say we arent normal, in my defence Ive only been an ostomate for no more than 8 weeks and am still coming to terms with it. So please dont be so sensitive, sure didnt want to rub u the wrong way
Don't worry, your post didn't offend me. I just didn't want you to get down on yourself. I remember when I first got my ostomy 20 years ago.....man did my mind play tricks on me, and I allowed myself to get to a really dark place mentally. I didn't want that to happen to you, that's all!

Post Edited (vette guy) : 5/4/2009 4:53:39 PM (GMT-6)


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 5/4/2009 6:08 PM (GMT -7)   
hsmom-getting confused was all me! tehre are times when someone could write down 2+2=4 and i would look at it for 2 hours before i figured it out, lol.

Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 5/4/2009 6:19 PM (GMT -7)   
Hey Summer,
I dream that I don't have an ostomy and I wake up and it is there. I had to go to the hospital 2
months ago because I had pain and my stoma was swollen and I had some kind of blockage and
I was terrified my crohn's had returned. the blood test were inconclusive and my C.T. was not
showing anything so I said the hell with it. I am not going back to the bad old days. We have all
been through really tough times and sometimes you get pts and once we have had our surgery
we think we are fine but you are also mourning your loss. At first you don't have time to do that
because you are dealing with your ostomy and later it starts to sink in that this is real and forever
and you have conflicting feelings about it. As long as you are sharing your feelings with us you are
in the right place and that is healthy. As far as needing a rubber room I think we all need one
when we have young children,spouses, inlaws and anyone else that we don't want to deal with all
the time! Just put on some music and dance!

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 5/4/2009 7:30 PM (GMT -7)   
Hey Vette Guy I understand where your coming from and appreciate it. Your right it sure can play mind games and has done to an extent for me even though I am feeling much better with the ileostomy than I have ever felt before its still confronting at times. take care and thanks

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/4/2009 9:19 PM (GMT -7)   
fruitcake-that is soooo funny, whenever i get really upset, i either put on music and dance, or i put on music (ya'll dont laugh) and sit on the island in the kitchen, or on the floor below it and just cry and cry, but i have to sit there i tried sitting on the porch doing it today cause i was really reallly really mad about something and thought that might help, but it just didnt work the same, lol.
I never thought of those weird dreams as a coping mechanism, just figured they were my normal crazy dreams!

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 5/6/2009 8:00 PM (GMT -7)   
Has this ever happened to you? I absent mindedly forget that I have the stoma! And think what in the world is this thing on my side? Crazy.. I allow myself just a few minutes to wallow in self pity. Then I write down all the things this surgery has done to improve my life and sure enough it was worth it.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/6/2009 10:08 PM (GMT -7)   
lol i havent ever done exactly that,but i do often forget its there, and find myself thinking i have something in my pocket cause my bag is really full!
And then i am like OMG i gotta go empty this thing, lol
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