I'm thinking j-pouch is the surgery I want to have. I'd rather not have an ileo permanently. And I'm not sure what kpouch is, I'll have to look into that. My GI dr was suggesting j-pouch when I talked to him about it.
Oh, I hope whoever I choose is booking 2 weeks out and not 3 months! I'm already down to 100 lbs, I can't go on for much longer without disappearing!
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda ( 2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg (Aug 2008), increased to 7.5mg/kg (March 2009), increased to 10mg/kg and increased to every 6 weeks (April 2009) - 7 infusions so far, next infusion on 5/28 continuing every 6 weeks; Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate); Prednisone 40 mg daily
Supplements: Women's One-a-day multi-vitamin; Super B-complex
w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis, Probiotic Align
Spinach and Sunflower seed butter diet (starting 3/21/09) (will try again once I can eat normally again)
Current Status: April, 2009 - suffering another flare-up :( Surgery may be my next option.