Ended up in the hospital .....

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ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 5/5/2009 8:54 AM (GMT -7)   
Sorry I've been away for so long ... been nursing myself back to heath. The first week went so well and then things started going downhill.
Last weekend I ended up in the ER, admitted for 2 days for dehydration. Now I'm on immodium to slow my stoma down!!!!

Things are better, I have more and more energy. I'm starting to get ancy and looking forward to my takedown surgery on June 3rd.

Still having problems with my wafer sticking down. The tape around the edge does not stick!!! It comes apart near to my naval. The other side is just fine. Any ideas on what i can do for this please?

Hope all is well otherwise with everyone ...

TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/5/2009 8:58 AM (GMT -7)   
do you use flat wafer or one w/ convexity? do you use eakin seal?

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 5/5/2009 9:25 AM (GMT -7)   
I use the 1" convex wafer from convatc. Also I use the paste.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/5/2009 10:03 AM (GMT -7)   
try cutting the corner off, just a little, and the area should stay down. Do you use skin prep?

I had problems with the tape sticking, too, in that area. Now I just cut off a little bit of it and I don't have any issues!
 
p.s. glad you are feeling better!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/5/2009 1:09 PM (GMT -7)   
Sorry you had to go back into the hospital for dehydration. That happened after my ileostomy surgery, too. They are so active at first that it's hard to keep up with the fluid intake by mouth.

I had surgery 2 weeks ago for a perforated small bowel and got a temporary ileostomy that's high up in the small intestine. It's so active that I have to be on IV fluids at home until I have it reversed next month.

When it comes to getting a tight seal with the wafer, I cut the hole in the wafer off to one side to shift it away from the belly button. Hopefully, that will work for you, too.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 5/5/2009 1:50 PM (GMT -7)   
I have the pre-cut wafers :-/
I am using the skin prep as well .. the wipes. It almost feels like that whole side of the wafer is lifting up. I can see the paste underneath it and that's holding pretty good.
I just feel uncomfy with it up like that ...

Not sure if cutting it a bit on one side will help ... trying to figure out the physics behind that :-)

running out of ideas...

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/5/2009 2:25 PM (GMT -7)   
the skin wipes can shorten your wear time, when i was using them as soon as my wafer got the tiniest bit wet, even from sweat, it popped right off!
the bandaid type part always peels back at my belly button. But because of how i tape the top ofmy bag down it holds that down. But you could also put a little piece of medical tape on the bandaid part to hold it down.

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 5/5/2009 3:18 PM (GMT -7)   
Thanks for the suggestions!
I called up Hollister and they were extremely helpful and knowledgeable as well. They are sending me samples of a bunch of stuff which should work for me .... let's see if I can get this thing down :-)

By the time I'm an expert at this .. it'll be time for the takedown.

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 5/6/2009 9:04 AM (GMT -7)   
Hey there-

I hope you get your strength back soon. You know, June 3rd will be here before you know it.
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone down to 10 mg

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 5/6/2009 9:17 AM (GMT -7)   
Hey Jackie .. how r u doing?
Yah before I know it I'll be back in that place.
I went to see Mary Lou the other day .. she's awesome !!! :-)

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 5/6/2009 4:11 PM (GMT -7)   

I saw her too- last week. Was having trouble with two areas that hadn't closed up yet. She is great.

I am ok... getting used to work - started back on Monday. Have been really tired but glad I am getting stuff done.

 

Take care


Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone down to 10 mg

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 5/6/2009 7:44 PM (GMT -7)   
I'm still not back to work ... just get tired and can't focus yet ...
By the time I'm ready I guess it'll be time to go back under the knife and then recover again ... :-/

My wafer is giving so many problems !!!
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