So frustrated... just venting for a second

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 5/5/2009 12:15 PM (GMT -7)   
I'm miserable, in pain, and I just want my colon OUT! I had two surgeons recommended to me, but neither of them can see me for a consultation for 2 weeks. And one of them is a general surgeon, so I'm not too keen about going to him. I'd rather go to someone that specializes in colon and rectal surgery. But I also don't want to pick just a random surgeon from a list. Looks like I may have to do that though if I want to get in sooner than 2 weeks. Ugh! I just want someone to get rid of this horrible colon. :(
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg (Aug 2008), increased to 7.5mg/kg (March 2009), increased to 10mg/kg and increased to every 6 weeks (April 2009) - 7 infusions so far, next infusion on 5/28 continuing every 6 weeks; Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate); Prednisone 40 mg daily
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis, Probiotic Align
Diet: Spinach and Sunflower seed butter diet (starting 3/21/09) (will try again once I can eat normally again)
Current Status: April, 2009 - suffering another flare-up :( Surgery may be my next option.


TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/5/2009 12:34 PM (GMT -7)   
sorry to hear this. cant you check in to the emergency room of the hospital where your doctor is? that should be better than a general doc. they should admit you then the ball should start things movin plus they would probably inform him/ her that youve been admitted. hang in there itll get better

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/5/2009 1:04 PM (GMT -7)   
Funny how things are. I want to wait and get mine out. (Don't have the pain and suffering you are going through) but I hope it ends for you soon. There is just no brain power when in a lot of pain. I too would go with the specialist. SHe/He practices more on GI Stuff and what you will need done?! A prayer your way for relief.

Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 5/5/2009 1:33 PM (GMT -7)   
Be patient. I know its hard to deal with bc i was in your shoes. I had UC and for almost a year went undiagnosed. It was SO frustrating bc i was literally RUNNING to the bathroom and the whole time i was pooing i was in pain from how inflammed my colon was. I had temporary ileostomy surgery Nov.19 of last yr and then 6 days ago i had it reversed. Im not feeling the greatest but at least im healthier than i was with my yucky colon. Just stay positive. Thats the best thing to do. And look up doctors that are around where you live that specialize in this type of surgery. I go an hr and half away to a hosptial that specializes in this and its deff worth the drive!
Good luck and hope things get better soon =) God Bless
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008
Step 2 April 29th!!
 
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 5/5/2009 2:26 PM (GMT -7)   
geminisunset said...
I'm miserable, in pain, and I just want my colon OUT! I had two surgeons recommended to me, but neither of them can see me for a consultation for 2 weeks. And one of them is a general surgeon, so I'm not too keen about going to him. I'd rather go to someone that specializes in colon and rectal surgery. But I also don't want to pick just a random surgeon from a list. Looks like I may have to do that though if I want to get in sooner than 2 weeks. Ugh! I just want someone to get rid of this horrible colon. :(

What state do you live in?  Maybe someone here can recommend a good surgeon for you.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 13, 2017 11:53 AM (GMT -7)
There are a total of 2,904,915 posts in 318,805 threads.
View Active Threads


Who's Online
This forum has 158183 registered members. Please welcome our newest member, The Anxious Jedi.
345 Guest(s), 14 Registered Member(s) are currently online.  Details
cupcakespinkgal, JayMot, Micah68, Ides, newuser22, MauiViv, DGinSD, Loutucky, getting by, Traci, Blu's Mama, BostonMarigold, Tall Allen, Bugleboy