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pfandme
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/6/2009 4:06 PM (GMT -7)   
confused  I had a colon resection and must admit I was feeling realy good afterwards. I was home a week and got realy sick. Needed surgery and this time they did a colostomy. It got wors after that but thats a different story. Now I am reading my medical records and in there is say " there was a leak, but it healted itself, didnt needed more stitches it looked good. There was a hematoma and abcess in my cavity so they cleaned that out too. The question now is was it realy necessary to have a colostomy  or was it not. I am so confused now. I am always tired, used to be a real fighter, cry alot and I am dizzy too most of the times. Can someone help me to get over this I am so depressed by all this.
Thank you

TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/6/2009 4:11 PM (GMT -7)   
did they say anything about a take down in the future or are you a lifetime member of THE BAG club? you might be a temp so that you can heal? all i can say is hang in there and keep in mind there are people worse off than you ( GOD BLESS the ones that are )

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 5/6/2009 5:35 PM (GMT -7)   
you deserve some answers. Can you make an appt with your GI or surgeon and ask these questions? I always go in with my notebook-- so I can write down what the doc says and so I can remember the questions I have. Even knowing well in advance that I was to have a permanent ostomy and lose my colon, rectum, and some terminal ileum, I have some confusion and depression--we all do. If you are dizzy, you need to let your doc know. Perhaps your iron is low or you are dehydrated. I too am having quite a time being a fighter again, sometimes you run out of steam and need some help. If you can't ask your doc or you are feeling too unwell or confused, get a relative or friend to call for you or go to your appt with you. Best to you.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/6/2009 6:14 PM (GMT -7)   

To start with, you are healing from surgery, so you are going to feel tired, it's okay to admit it, too!!  You've also just experienced trauma of having multiple surgeries in a short period of time.  PLEASE don't be too hard on yourself either...

Dizziness can be a sign of dehydration...are you eating and drinking?  How long ago was your surgery and are you still taking meds?

You should talk to your doc about meds to help with your depression as well as whether or not the ostomy was necessary (and temporary at this point).  Do you have someone you can talk to?  You can find ostomy support groups in your area on www.UOAA.org they may be able to help you, too.

Please keep us posted.


pfandme
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/7/2009 5:17 AM (GMT -7)   

Thank you for all the support.

It's not just the stoma its everything, bills are pouring in, insurance that didnt wanna pay ostomy supplies had to fight with them for over 1 week. Hubby doesnt know how to deal with it either. He goes outside and do some outside work. I am so depressed that I told him next time something goes wrong dont let them do anything if God want me to live fine if not fine too. Going to call the docter today for my depression cant go on like this. My first surgery was on March 19, second one was on March 30, on April 5th I was life flighted to another state and I am now home since April 23. I dont remember a lot and lost 2 weeks of my life and I am confused about that too as I like to know what has happened to me. Sorry I am nagging I know I am not alone and I know that it can be reversed, have to wait at least 6 months to 1 year, so all my bloodclots will be dissolved. I got heparin induced thrombocyopnea with thrombosis, so scared for another surgery everthing at this time is against me. Can't have heparin anymore next time it could kill me I was lucky tis time all the docters told me.

Thanks again for listening to me.

Take care all of you

 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/8/2009 5:27 PM (GMT -7)   
pfandme,

I just wanted to let you know that you can come to this forum ANYTIME and post your fears, concerns, rants, whatever you want to. We are all very understanding. Most of us have had many of the same symptoms as you at some point or another, maybe not exactly but similar. That's what we are all about.

You have been thru a LOT. Don't be afraid to speak to your dr. If you want meds or if you want to be referred for therapy, I'm sure the dr can help you - and maybe help you make the decision. Do whatever makes you feel better... but do it only if YOU want to. It is amazing what the body goes thru, and what chemicals in the brain are affected by all the anesthesia, pain meds, etc. It's your body, it's your choice--- take control of it.

Hope you have a good Mother's Day weekend.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


kimlin08
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 5/8/2009 7:58 PM (GMT -7)   
 pfandme,   I know exactly what you mean   its 5 months sice my emergency colostomy......my best advice to you is LEXAPRO 30 mg.....it helps.....i worried about the bills.....but they will get paid if you have to pay them 5 dollars at a time........talk to them they will adjust sometimes   the hospital did mine 25 % i had 26 days in t he hospital......as for your husband....mine and me just had been married 5 months when this happened to us......our anniversery will be august 8 and on the 4 I will have my reversal........that is where we will spend our first anneversery.....my husband still has problems with being intiment.....hes so afraid he will hurt me.....talk to him, quietly when you have time to be alone......dont let this destroy your love.........its as hard on him, as it is on us......sometimes i think harder,,,,,people sent me flowers still and cards and he just nothing....thats why i try to give him special attention and thank him alot for standing by me.............he certainly done things to me i never though about ever not being able to do for myself.....now i have to have they ovaries removed and another docter dont want to touch me after the one messed me up....just know we all on here have our stories and take comfort in knowing everyone feels for you and weants more than anything to help someone on one of there many bad days.....these guys have taken turns listening and showing me support......my email is kimlin35@yahoo....if you ever need a friend  im here for each of you.......this forum has keep me sane when no one else could......love you all,,,kim maggie
Maggie in tennessee....coping

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