still full of questions

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Regular Member

Date Joined Mar 2009
Total Posts : 192
   Posted 5/9/2009 6:45 PM (GMT -6)   
I have been researching and reading my upcoming surgery of having everything removed. When they put the permanent ileostomy in will they put it in the where the temporary is now or will they have to make a new whole. Also I have read that they can do it laproscopic, can they remove everything like that.

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 5/11/2009 7:19 AM (GMT -6)   
I had a temporary ileostomy before having a proctocolectomy with permanent ileostomy. My surgeon kept the ileostomy the same and did an open surgery. I know they can do it laproscopically, so you can talk to your surgeon about it.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 5/11/2009 10:05 AM (GMT -6)   
I am similar to Cecilia where I had the temp ileo first so they kept the same placement. I have had many surgeries so the option for lapro was never there...that is definitely a question for the c/r surgeon.

Veteran Member

Date Joined Nov 2003
Total Posts : 518
   Posted 5/11/2009 11:33 AM (GMT -6)   
My perm. is on the opposite side and mine was done open--I never even thought to ask if it could have been lapro.

Regular Member

Date Joined Mar 2009
Total Posts : 192
   Posted 5/11/2009 7:43 PM (GMT -6)   
Thank you......they opened me up to do the temp ileo so I assume they will cut the same place. I just thought it was cool.

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 5/11/2009 9:38 PM (GMT -6)   
My perm ileo is on the same side as the temp ileo.  All of my surgeries (resections before I had the perm ileo) have been open surgeries.  I don't think there was even laproscopic surgeries being done for CD in 1984.... along with remicade not even existing!!
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

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