Hey guys! I've recently been battling some severe "dehydration." I hesitate to really call it dehydration because it's not that my electrolytes are out of whack because I don't drink enough, it's that my body can't absorb it so the water just comes out and therefore my blood volume is low. It took a couple docs to come up with this (although it's a simple orthostatic blood pressure test), but after 2 ER visits and months of being weak and tired that's the final answer.
So how do you all deal with staying hydrated and not peeing all your fluid intake out? My kidneys are working fine, so the only real problem is that I don't have a colon to do the job. The doc said that drinking things like pedialyte probably won't help more than water since it's not an electrolyte problem, but a volume problem. The only option I see at this point is going in for IV fluids every week or two, it seems to help. Any other suggestions?
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
Meds taken with no result: 5asa, imuran/6mp, remicade, and of course prednisone, both oral and enemas. Also, many many herbal remadies.
1st j-pouch surgery done on July 30, 2008
2nd j-pouch surgery (ileostomy reversal) on November 14, 2008
Med and pain free :)