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glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/10/2009 11:22 AM (GMT -7)   
I have a question for you about the convex wafer...
 
When/how did you know that is what you needed? I haven't been able to measure mine very accurately because the bridge is still in. I am having leaks now and I think that the stoma might now be sticking out as much as it should be. I get my bridge removed on thurs so I will be sure to ask. I am getting about 2-3 on average and then I get a leak. It looks like my wafer on the inside peels back and then my skin itches/burns and then I get a leak. This is making me crazy!
 
Thanks!
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 5/10/2009 11:37 AM (GMT -7)   

I am a newbie, just like you, but just recently started using a convex wafer. I was having leaks pretty consistently every other day and had red skin breakdown from the acid. I know my stoma had shrunk considerably, but even though I was using my eakin seal it was not enough. It was leaking out the bottom and with no real warning. I called my ostomy nurse and went in early the next am. They said I had done a good job taking care of my skin as best I could, but knew something was wrong right away when she removed the bag and wafer and there was stool on my skin. My stoma is 7/8 '' but is also more protruding on top and flatter on the bottom and the whole pointed at 8 o'clock which was why I was always leaking out the bottom.

They suggested a convex wafer and I have not had a problem since. It works to help push out your stoma, plus I use a circular eaken seal just aroung my stoma and this is extra security. I would never not use the eakin seal. I have extra of these products of you want to try and I can send thenm to you. I used powder and barrier wipes on my skin and its all cleared up. Hope some of this helos. I think you need to call your ostomy nurse and explain what is happening. It drove me crazy as well. I will be four weeks post-op tomorrow. I ise the hollister convex wafer, mine are pre-cut the eaking seal, and then a mini bag becuase i am so short :)

I am no expert, but hope this helps.

Lizzie


Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Dx Anismus- Second opinion U oF M
Recommended at home biofeedback for 2 months, BUT before I could
Admitted with Small Bowel Obsruction April 4, 2009.
Suggested ileostomy April 12 with no resolution.
Loop ileostomy April 13, 2009 and still recovering.
Right abdominal abscess and hospitlilization April 20-24
Cleveland Clininc Surgery consult for kock pouch May 27 with Dr. Remzi (understudy of Dr. Fazio)
 
"The Greatest Healing Therapy is Friendship and Love"


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/10/2009 3:41 PM (GMT -7)   
Lizzie

I have some eakin seals but I haven't used them yet. I really think I do need the convex wafer, I don't want to wait until Thursday.
This is awful!!! How do you use eakin seals? Do you use them with skin prep? Can you put something on them? ANy help would be greatly appreciated!!!!

Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 5/10/2009 4:21 PM (GMT -7)   
As these wise people once told me the less is better...... I only use the eakin seal under the wafer and nothing else and get between 4 to 6 days

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/10/2009 5:03 PM (GMT -7)   
So you clean the area, put the eakin seal on, then the wafer? That is it?
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 5/10/2009 5:29 PM (GMT -7)   

exactly, i cut my circle of eaken seal in half, strecth is out a little and wrap it like a scarf around my stoma and them apply the wafer.....you can also wrapp the eaken seal on the wafer itself, but i prefer to put in around my stoma.

Hope this helps.....soundsl ike u need the convex wafer. I do not use the barrier prep and powder unless I have skin brakdown whcih is sounds like you do......

let me knoe any oher questions.

Lizzie


Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Dx Anismus- Second opinion U oF M
Recommended at home biofeedback for 2 months, BUT before I could
Admitted with Small Bowel Obsruction April 4, 2009.
Suggested ileostomy April 12 with no resolution.
Loop ileostomy April 13, 2009 and still recovering.
Right abdominal abscess and hospitlilization April 20-24
Cleveland Clininc Surgery consult for kock pouch May 27 with Dr. Remzi (understudy of Dr. Fazio)
 
"The Greatest Healing Therapy is Friendship and Love"


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/10/2009 7:17 PM (GMT -7)   
If you have skin breakdown at what point do you put the powder on?

Sorry for all the questions, I want to make sure I do this right.

Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 5/10/2009 8:06 PM (GMT -7)   

I used it right away....i would apply powder, wipe off excess and dab with barrier wipes and do again for second layer. Mine was preey bad and they were impressed how well i tool care of it. Now I have none.....the faster you treat it the less your going to ve chances fo the oiwder not being enough and developing  something worse.....

questions are fine, i just hope i am helping, i anm a newbie....not even 4 weeks out, but have had a fair share of issues.

hope this helps and keep us posted.

;izzie


Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Dx Anismus- Second opinion U oF M
Recommended at home biofeedback for 2 months, BUT before I could
Admitted with Small Bowel Obsruction April 4, 2009.
Suggested ileostomy April 12 with no resolution.
Loop ileostomy April 13, 2009 and still recovering.
Right abdominal abscess and hospitlilization April 20-24
Cleveland Clininc Surgery consult for kock pouch May 27 with Dr. Remzi (understudy of Dr. Fazio)
 
"The Greatest Healing Therapy is Friendship and Love"


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/10/2009 8:42 PM (GMT -7)   
Lizzie!

I am scared to do this. I am 3 weeks and 2 days out of surgery. Things were going well in the beginning but now I think that my stoma is shrinking and getting sucked back in my body...even though I realize that doensn't really happen. I want this stupid bridge out so I can measure it. I don't want to wait til thursday. I'm afraid of using the eakin seals...I know this probably sounds silly too. I hate dealing with leaks. Ahhh! I'm so paranoid I check for them all the time and I dont' sleep well. This is crazy!

Thanks for everything! and your quick responses!!!
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/11/2009 3:11 AM (GMT -7)   

glaciergrl--knowing that you need something different is half the battle!!!  I have something similar with my stoma...mine REALLY dips in on the underside which was causing me a lot of leaks.  Hang in there because you'll get the right product and stop the problem!!!  Convexity sounds like it will help with your uneven stomach and will pull the lower point up.

I don't know if you'd be able to use the convexity until you have the bridge removed...I don't think you'd get the full effect... but I am not sure!  As far as you stoma shrinking, do you have cut to fit wafers so you can make them small enough?

With the Eakin Seal, I make it the size of my stoma (I have to make it smaller) and keep it in one piece, apply to wafer and then apply the combination to my skin.  I don't use skin prep/adhesive remover/power anymore UNLESS I have a breakdown issue.  The skin prep can shorten your wear time and some manufacturers do not recommend it with their wafers...so check yours...if you do use the powder, only use it on the reddened areas and then wipe/blow off your skin because that can cause issues with wear time, too.


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/11/2009 8:25 AM (GMT -7)   
I don't have to cut my wafers I have the moldable ones. So I have a bunch of the medium ones and I think they might be too big.

As far as using the eakin seals I have irritated and red skin everywhere. The nurse in the hospital didn't but anything on my exposed skin by my stoma so it is red, bleeding, and painful!

Thanks for all your help, I am just still so frustrated. I can feel it burning...and I cringe wondering when it will leak.
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/11/2009 12:03 PM (GMT -7)   
That could be the problem...I've used the moldable ones in the past and they weren't strong enough to keep the convexity working for me...something to do with the strength of the 'moldable' area.

The Eakin Seal should help calm the irritated area...how long has it been?

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/11/2009 12:32 PM (GMT -7)   
I had my surgery on April 17. It was fine in the beginning but when the nurse changed it in the hospital for the first time she left some skin just hanging out there. The area right underneath my stoma is the nasty part. I have a nurse coming this afternoon and I will ask her about eakin seals. They keep shuffling me around from nurse to nurse and I have never had this one before. I wish I had someone that consistantly came that could help me.
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/11/2009 7:04 PM (GMT -7)   
Holly,

I am sorry that I wasn't able to get back to you sooner. But I have read your questions and all of the suggestions you received. Everything mentioned pretty much covers my thoughts. Be sure that you try to cut (mold) the hole of the wafer so that it fits snug around the stoma. The least amount of skin showing, the better. However, I've tried the moldable wafers in the past and I was not successfull in using them either. I know they "collar" around the stoma and some can use them without any issues. At the time I tried them, I was not using a convex wafer and it seemed like my stoma retracted and the moldable collar didn't allow it to move back outward easily. I may be crazy but that is what it seemed like to me. I use the Convatec SurFit 2 pc system with a convex insert in the wafer. Plus the Eakin, which I only use directly around the stoma. (I place the Eakin directly on the wafer.)

The Eakin Seal really helped me with the convex wafer. I don't know too much about 'bridges' but I would certainly call your Ostomy Nurse. They could certainly give you the answers to the questions you still may have. (I hope).

You are certainly asking very good questions for only being a few weeks post op. I wish you the best of luck. We/You will find the answers and get your wear time increased. Hang in there.

I won't be able to check the boards tomorrow until late in the evening again as I will be out of town all day with my DH. I'm sure there are a bunch of others out there that can answer your questions. I'll check in on ya tomorrow night.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/11/2009 7:57 PM (GMT -7)   
Peggy!

Thank you so much! I appreciate all your advice

To Peggy and everyone else...

I met with my homecare nurse this evening and we tried the eakin seal on my skin with only a little powder on the irritated skin. Then we put the wafer right on the eakin seal. So far so good. I'm not quite sure what to expect. I am paranoid but things seem to be okay. I ate and I haven't felt the crazy intense burning so at least I know my skin is protected. You have all been so great. I'm hoping this is it! This is going to work for me!!!

I'll update!
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/12/2009 3:57 AM (GMT -7)   
Holly-Good for you...I hope things are still working this morning smilewinkgrin That Eakin Seal is just down right amazing, in my opinion!!!

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/12/2009 9:48 AM (GMT -7)   
So I have another question...

The eakin seal seems to be doing a good job, but when I look down at my stoma I can't see it anymore. Ha! It seems like the top of the eakin seal has kind of melted down on top of my stoma. Is this bad? Should I take it off or just leave it? I don't think it is hurting anything but I am no expert!!! I do'nt feel much burning at all! My skin even looked better last night! I'm hoping, fingers (and everything else) crossed!!!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/12/2009 10:01 AM (GMT -7)   

it is okay to leave it like that...just remember if you start to have that burning sensation you'll want to change the appliance.  That extra bit should 'melt' away, so to speak, you just want to be careful if output gets behind the wafer.

Glad to hear things are working smurf


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 5/12/2009 12:18 PM (GMT -7)   

Holly, mine did the same thing.....it only improved when the covex wafer was used and now i can finally see it. It truly sounds that once you get a nre wafer and use the eakin sela, get your skin cleared up, youll be good to go......I love the convex wafer and eakin seal and i feel much safer.....and I think youwill too. Your not too far behind me in recovery so I know how you feel.

Praying for you......dont worry that bridge will be out soon!!!!

Lizzie


Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Dx Anismus- Second opinion U oF M
Recommended at home biofeedback for 2 months, BUT before I could
Admitted with Small Bowel Obsruction April 4, 2009.
Suggested ileostomy April 12 with no resolution.
Loop ileostomy April 13, 2009 and still recovering.
Right abdominal abscess and hospitlilization April 20-24
Cleveland Clininc Surgery consult for kock pouch May 27 with Dr. Remzi (understudy of Dr. Fazio)
 
"The Greatest Healing Therapy is Friendship and Love"


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/12/2009 6:11 PM (GMT -7)   
Thanks guys!
The eakin seal is still holding and let me tell you!!! I feel tons better!
I don't think that I would've figured any of this out without you guys.
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/13/2009 11:17 AM (GMT -7)   
I had some irriatation this morning so I had to change everything...sigh
but to my surprise!!! The eakin seal was perfect!!! It is so amazing I will be swearing by these until my reversal! I am SO SO excited! Thanks o much everyone!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/13/2009 3:09 PM (GMT -7)   
YEH for you!   If the ES held up, where was the irritation?  Sometimes frequent changings can also cause some irritation. 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/15/2009 2:27 PM (GMT -7)   
I had irritation on the  bottom where stuff was coming out...
 
I also wanted to let you all know that I had a visit with my surgeon and the ostomy nurse yesterday! I got the bridge removed!!!! YAY! And like many of you suggested they switched me to a convex wafer and went to a smaller size. Things are so much better today I can't even express it all.
 
Thanks!!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006

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