My UC hit hard and heavy two years ago, and I found very little comfort from ANY of the medications, including Prednisone and Remicade. I also had many complications from the side effects of these medications, so my decision was quick and I the surgery could not happen fast enough.
I saw the surgery as my cure for the disease. I was in so much pain and I was losing the battle minute by minute. My biggest decision was to actually take the time to take care of me, as I really didn't want to slow down. I was enrolled in classes, working full-time, and just really had a packed schedule. I had found my nitch in living with UC, but my family had a mini intervention and I quit school, took off work, and was given Penelope (my stoma).
I love Penelope. She's saved my life! Well, actually my GI and surgeon did...but it's Penelope that's my daily reminder of how lucky I am. The only complaint I have is changing my accessory (appliance) every 3-4 days. It was every 6-7 days, but I am now using a one piece, and the longivity is less.
Anyway, no...this decision was not the most difficult. I have yet to really make a decision I cry over, or really stress about. I do admit the week prior to surgery I was second guessing my decision, but that's normal. Making it was no biggie. Now, when/if the day comes to have 'the talk' with our vet regarding my cat Chloe...I'll be a mess. Chloe was with me during a bad break-up many years ago, and she was up with me during much of UC bathroom breaks 24/7. She's my Chloe Louise...I just can't think of being without her.
I know many of you have and did struggle with your decision. The way I see it is that you have a malfunction in your body...there is something not working appropriately and it is up to you to take care of your body...if the medications are not working and that something (for us a very nasty little disease) just is being stubborn, then kick it's ass! Take care of the culprit that is very hastidly intruding into your life and be done with it! I know it's a little blunt, but seriously...what good has your colon brought you thus far? Pain? Agony? A major dip in your quality of life? Oh, not to mention all the bonding time you've had with your bathroom wall and all the imperfections surrounding your John. : ) I am not proud to say that I am a Sudoku Princess...and why is that? I needed something to do and take my mind off that excrutiating pain!
Sorry...I got a little carried away. Have a nice evening!!!!!!!
: ) Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open." -Unknown