Positive Thoughts on Ileostomy Reversal

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Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 5/14/2009 7:34 AM (GMT -7)   
Hi Y'all! I had my ileostomy reversal done on March 9th and just thought I would write some encouraging words for anyone else facing the same.  I was only in hospital three days and had very little pain.  I appreciate that I have been extremely lucky.  Once I got home I had no problem at all with diarrhea, butt burn, etc......my problem was actually the opposite...constipation.  Once I got things moving it was fine and has been ever since.  I just have to be careful not to let myself get constipated.  For this I use ground flax seed daily and prune juice when I feel I need it.  Other than that things are so GREAT!!  I just wanted to post the experience I had with it so that it hopefully may encourage others facing reversal in the near future.  I am so happy I had it done and full of gratitude for each day.  I feel great and very very blessed!!~~~Cheryl 
Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 
Ileostomy Reversal March 9/09


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/14/2009 8:50 AM (GMT -7)   
Cheryl,
Thanks for posting your experience. I think it is important for others to see that there are short recoveries and long recoveries to emphasize that everyone's body is different and heals in it's own time.

I know that you exercise, walk a lot, right? What other tips can you give those who recently had reversal or are having it in the near future?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 5/14/2009 10:12 AM (GMT -7)   
I had my reversal on April 13th. I spent 8 days in the hospital. My doctor took it very slowly with me, because of all the problems I had that caused me to have an ileostomy to begin with. I had bowel perforation, with over a liter of pus in my abdomen, at the time of the original surgery. My pain was controlled with an occaisional shot, after the first few days. I recommend if you take anything to the hospital to read, make sure it's light reading. Not something heavy duty. Take a universal remote control for the TV, and the instructions for it. <G> don't plan on sleeping a lot in the hospital. OH and take your cell phone. Dont forget comfortable slippers for when you're up walking, with a non skid sole on them. Don't worry about pajama's or anything like that, while you're there. The liklihood of  you needing anything like that, is slim and none.

ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 5/14/2009 11:32 AM (GMT -7)   
How many trips to the bathroom a day are you making?
 
All the best and nice to see a positive post.  I am thinking about this option at the moment!
 
Elli :)
Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions
No Joy!
 
Colon Removed 18 March 1:30pm!
Ileostomy
Option for Jpouch but have not made my mind up yet!


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 5/14/2009 12:02 PM (GMT -7)   
I actually have several bm a day.  Usually about 4, but they are not terribly urgent and I can hold until I am near a washroom, so it's not bad at all~~~Cheryl
Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 
Ileostomy Reversal March 9/09


ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 5/14/2009 1:34 PM (GMT -7)   
Just reading through your little bio at the bottom of your post. I guess you must have some of your colon left in place? Dont mean to be nosey!
Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions
No Joy!
 
Colon Removed 18 March 1:30pm!
Ileostomy
Option for Jpouch but have not made my mind up yet!


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 5/14/2009 1:44 PM (GMT -7)   
You're not being nosy at all...this is the place to ask questions, so feel free to ask away!!  Yes I have most of my colon left.  Just a small piece had to be removed due to the mesh erosion~~~ Cheryl

Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 
Ileostomy Reversal March 9/09


poopy-pouch
New Member


Date Joined May 2009
Total Posts : 4
   Posted 6/14/2009 1:53 PM (GMT -7)   
I had my ileostomy reversal april 21st. I, like you, have had more problems with constipation then the other extreme. I have introduced prune juice but still don't think I am getting enough fiber. I just read that men over 50 need a minimum of 30 grams of fiber a day. Can you or anyone else suggest some simple ways of introducing more fiber into the diet without overdoing it?

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/15/2009 4:07 AM (GMT -7)   
Hi Cheryl, Thanx for that, i'm seeing my surgeon later today and hopefully he will give me a date for the reversal really hoping my resections have healed enough to get it done ASAP!! Bev x 

Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma
 No maintance drugs as such on B12 shots,iron syrup,loperimide, 20mg EScitalopram 4 anxiety.


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 6/15/2009 9:55 AM (GMT -7)   
Hi Bev!  Good luck with your appointment today!...Cheryl

 
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 Ileostomy Reversal March 9/09


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/15/2009 2:00 PM (GMT -7)   
i am so happy to hear that. I am so excited to get it reversed even though it is like 2 months away. I really hope I don't have any complications. My concern is that I have been steadily dropping the pounds since I got home. I weight what I did at worst colitis flare. Today I am getting light headed so I am taking is slow.

:)
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/17/2009 3:54 AM (GMT -7)   
Cheryl,
I'm so glad you're doing well. That is such an encouragement to everyone who is facing reversal surgery.
 
Poopy-pouch,
Some fiber rich foods are bran cereal, whole wheat bread and pasta, brown rice, any type of beans, apples, bananas, blueberries, nuts, and peas. If you do a Google search, you'll find a long list to choose from. You can also supplement with Benefiber tablets.
 


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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