Eakin Seals FAQ's

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peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/14/2009 6:44 PM (GMT -7)   
Here is a web site that talks about the Eakin Seals and some hints, etc.   I came across this a long time ago, but thought I'd share it again since there are a lot of folks using them now.
 
 
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/14/2009 9:59 PM (GMT -7)   
Thanks for sharing. I still don't get the whole thing and how it works. I'm just studying up on the different kinds. Not sure what we get in Canada.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/15/2009 12:40 AM (GMT -7)   
A lot of people here on this board either use the ES or have switched to them. I'm one of the people that switched to them a few years back. Actually it was by the suggestion of a user on this forum at the time... I took her advice and it worked for me. I'm passing on what info I can now to help others.

Trigirl, if you have questions - please ask. It's the only way to "learn".
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 5/15/2009 3:08 AM (GMT -7)   
I looked at their website earlier this week.
http://www.eakin.eu/template.asp?pid=245&area=1
At this link there is some videos on the products they do. It really shows what they do and how to apply them.
I am waiting for my samples at the moment and hope they are as good as I think they will be!!
Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions
No Joy!
 
Colon Removed 18 March 1:30pm!
Ileostomy
Option for Jpouch but have not made my mind up yet!


ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 5/16/2009 7:52 AM (GMT -7)   
So my sample arrived.  A little booklet on the seals with 4 sample slim seals instead.
I have just done my bag change and after going through 3 of the 4 seals gave up with them! 
Everytime I pushed the seal onto my skin, it would stick to my finger and lift off with it.  I couldnt get it to 'mold' to my shape at all.  I warmed it up between my hands for 30 seconds (actually counted all the way to 30) and it was very moveable in my hands, but as soon as I tried to get it into shape on my stoma it just would not play ball.
I watched the videos on how to use them, read the instructions etc etc but I think I must be missing something.
 
I am really desperate to get some sort of extra protection as nearly half of my skin round my stoma is now blistered and when i wipe and clean the area skin is just peeling off :(
 
I am now giving up on the pre cut service with my current supplier as I went through several bags once I was ready to put on a new bag trying to find one that fitted me right.  So much for giving them a template to copy!
 
Arrghhh - having a right rant!!  lol 
 
I am starting back at work next week and now looks like I will be having a day off to go to the hosp to see a stoma nurse :(
 
 

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/16/2009 7:59 AM (GMT -7)   
Elli,
You may need to cut your own wafer holes according to your own template.  I have never used the precut ones.. I just don't have enough confidence that someone else will do it like I need it.
 
Re: ES --  you can stick them to the back of the wafer, then apply the wafer to the skin.   That is how I do it.  If your skin is weepy, you will not get a good seal.  You may need to try the stomahesive powder in addition to the ES.  Are you familiar with that?  The goal is to stop the skin from getting irritated from the contents of the bag BUT we have to get you a GOOD seal too.   They go hand in hand.   Have you used the powder?  It helps to heal irritated skin and you can apply the wafer overtop of it.  I haven't used it for years, but others on here do and I'm sure will have hints for you.
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 5/16/2009 8:13 AM (GMT -7)   
Hi Peggy

I think I agree with you about not trusting anyone else to cut the bag.
I have calmed down now!
I have used powder since last week, but without getting a good fit its a losing battle at the moment. Every single one on of my bags is pre cut so I am going to have to put up with that until I order some more uncut. The area i started using the powder on seems to be healing, however where the bag has had skin showing the rashes are spreading. I have powdered over all of it today.

Slighty off the topic of ES - I have noticed my reactions to problems go from 0 -100 without any middle ground. I was soo patient with UC but I find my self very emotional very quickly when things with the stoma go wrong. I am 2 months post suregery now so maybe still adjusting.
Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions.
Colon Removed 18 March 09.
Ileostomy
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/16/2009 9:35 PM (GMT -7)   
Hang in There ... you are doing really good.
 
Some of the emotions are still effects from the surgery, and getting an ostomy and then taking care of it, crossing your fingers each time you change that you don't have a leak, YeH I was a nervous wreck when I was in your shoes.   It is quite normal.  You will feel better when you are in more control of things and get that "right" fit and combination and then go several days without any leaks or discomfort.  So, the only thing I can say is to keep 'fighting' and keep a positive attitude.   You really are doing very well and asking great questions.
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 5/17/2009 2:41 AM (GMT -7)   
Thanks Peggy. I work in an IT dept for a large college and when i go back to work next week i am goin to sit at my desk with this web page open on my laptop! Reading the posts over the last few months has been a God send. I live on my own so emotional support has been a bit thin on the ground for me and this web site has been great. It will be my security blanket next week in the office!!! lol
I think also my emotions are riding a bit high as I am tailering off steriods at the moment. 2 more weeks and i will be steriod free for the first time in years!
Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions.
Colon Removed 18 March 09.
Ileostomy
 


Formula1female
New Member


Date Joined May 2009
Total Posts : 8
   Posted 5/17/2009 2:11 PM (GMT -7)   
Hi Everyone
I live in th UK and just joined the site as needing some info on IRA. I had an ileo in December, and saw your posting regarding Eakin Seals. I use Eakin seals called Cohesive Slims and they are brilliant! They sved my skin when I had ulcerated burns and couldn't manage without them!

Personally, I heat them slightly so they become more pliable, I then leave the protective white circles on and flatten them, then remove the paper and pull them to make the centre hole bigger. I then apply directly to the back of my bag (not pre cut) and then use the protective paper (shiny side!) to flatten and secure to the bag. Having applied a barrier to my skin, I then apply the bag! Sometimes you get a bit of seeping under the edge of the seal, so you can get a bit sore immediately around the stoma, but they have saved me! I swear by them and would not consider changing them! I use Pelican bags which are fairly comfy too, and I belive these are also an Eakin product.

Hope this helps some people?

ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 5/18/2009 1:48 AM (GMT -7)   
A few people seem to use the method of sticking the seals to the back of the bag and then applying it to the stoma.  I will give it a go.
Once you have your bag on, do you then massage the ES up to the stoma to make a tight fit?
 
The problem I had when I tried the massage it kept sticking to my fingers and pulling away from my skin, but if its already stuck to the back of the bag this might resolve that problem....
Elli 28
UC since 17
Azathioprine, prednisolone, Asacol,
blood transfusions, iron infusions.
Colon Removed 18 March 09.
Ileostomy
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/18/2009 5:15 AM (GMT -7)   
Elli,
 
Here is what I do ...  Since I only use strips (about 1/4" wide or so) of the ES that I actually cut from the ES wafer, I place then around the wafer hole where the stoma goes and actually press (massage) it briefly so that it extends beyond the hole opening which actually makes a little tighter fit for the stoma.  SInce this is the point where breakdown will occur first, I get the best seal doing it this way.  In fact, I even slightly wrap the edges of the ES to the front side of the wafer thru the hole opening.  DOes that make sense?  Let me know if it doesn't and I will try to explain it better.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


TheBag
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 5/18/2009 2:17 PM (GMT -7)   
its incredible the same things we go through. hey UK spoke to you before about this. another bridge we will cross. what in the world are you doing? are you using the whole seal? if so PLEASE STOP! you shouldnt even have to use half. are you having trouble w/ leaking? where does your meatball function from? 6 oclock 7 oclock? this kinda proves though what might be good for one and not another. all WE can do is kinda nudge you in hopefully the right direction. peggy has a way ive got a way. i just want you to get to the point that you dont know its there unless its getting full. trial and error and oh a lot of frustration. hang in there were here for you.

ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 5/19/2009 4:54 AM (GMT -7)   
Hi
Yes I was using the whole seal..!!
I will be changing later on tonight and I have a couple of ideas to try this time and see how I far.  As well as sticking the seal to the bag, I am also going to try wrapping the seal round the stoma instead of sliding it over and through the stoma.
I think your right, everyone has their own little ways of doing things.
Hoping the tighter self cut bags will also cut out a lot of the problem of output getting under the seal.  Its a learning curve I gotta go through I guess.
Thanks for your thoughts :)
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