HELP! It's almost hurting around my stoma?

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Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 5/15/2009 8:36 PM (GMT -6)   
After I whined about not going in 36 hours, I found stool in my bag. SO, it's working now.

But, I'm not sure why but it kind of hurts AROUND the stoma? Did I do something wrong? Is that maybe the incision healing? Maybe it's an itch but it feels different with the wafer around it?

I'm going to take my xanax, and get up tomorrow and call my ostomy nurse, but I am a mess about this and I had it all under control this week. My ostomy nurse was SHOCKED that after she showed me once how to change it that I changed it once in front of her, and when they took my staples out,I had to change it again and she wasn't there. She came to my room yesterday to go over it and I had already done it because they took my staples out.

How did you also deal with your bag overlapping your incision? It was fine until the staples came out... I so should of had them leave those staples in longer.. I'm regretting asking if they could come out now.. but the incision is itching, so I know that's a sign of healing...
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira. Onto Tsyabri. If I fail that, total colectomy.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 20 months old


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/15/2009 8:40 PM (GMT -6)   
Is it kind of a pulling feeling? I get that sometimes if the bag gets full and isnt supported. I used to get that a lot at first.
Or if i eat soemthing thats kind of thick coming out i sometimes get a funny feeling around the area.
Im not sure what to tell you about the incision, if its just the bandaid part you can cut it back to where it doesnt cover it.

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 5/15/2009 8:52 PM (GMT -6)   
Thanks. Yeah, maybe that describes it..pulling. Bag isn't full though, so maybe just because it's new? I'm hoping to get this bag until Tuesday. I have 2 left between now and then and OODLES of samples, but I REALLY need to wear a convex wafer for a while and a lot of my samples are one pieces (which is fine.. I like them). I'm thinking I may have put the wafer a tad too close and it's causing tugging. I may just give up and change it saturday or sunday.. going to call my nurse first.

And, yeah, it's actually a tad bit of the wafer and most of the bandage. I'm thinking I'm going to cover it with tape. I semi-sorta swiped the rolle they left just in case this happened.

I never thought I'd be like this with it. And, I don't *know* anyone I can just call if I freak about it.

Thanks again!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira. Onto Tsyabri. If I fail that, total colectomy.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 20 months old


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/15/2009 9:00 PM (GMT -6)   
welll you can always post on here if you freak out about it!

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 5/15/2009 9:47 PM (GMT -6)   
Thanks..the stoma started working and then stopped! Oh, I'll be glad once I know how my clock works, so to speak! I'm definitely call my nurse tomorrow (I think she works tomorrow) before I lose my mind!!!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira. Onto Tsyabri. If I fail that, total colectomy.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 20 months old


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/16/2009 4:51 AM (GMT -6)   
kaycie--if she's not there, I sure there will be someone else who can help...don't be shy, ask them all the questions you need!!

When my incision was 'new', my nurse showed me an easy trick: Take a piece of gauze and cut strips about an inch wide. Lay them over your incision (I had steri-strips I wanted to protect) and then you can apply the 'tape' over it. I would then take regular paper type tape and cover that whole area. The nice thing about that trick is that you can remove the gauze to shower and then put dry stuff on after. I also used a belt when I couldn't get the total wafer on my skin for insurance!

summerstorm's comment about cutting the area away will also work...I've used that for other things:)

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/16/2009 5:19 AM (GMT -6)   
I'm glad things started moving again! When it comes to the wafer overlapping, have you tried cutting the hole in the wafer off center to move it away from the incision? It works for me.

I had emergency surgery a month ago for a small bowel perforation, and the surgeon gave me a temporary ileostomy. Up until a few of days ago, I also had a lot of stoma pain, especially after eating when the stoma was moving.

When I changed my wafer the last time, I noticed that the stitches around my stoma had long strands that were getting stuck under my wafer, causing it to pull. I took a scissors and carefully cut the ends shorter. It really helped, because I haven't had any pain since.

If you're too scared to cut them yourself, you can always ask the nurse or doctor to do it for you. Until then, you can smooth the ends of the stitches around the stoma, so when you put on a new wafer, they won't get caught under the sticky part.

I think the pain is a combination of the stitches pulling and the area around the stoma is still healing. I just wanted to assure you that the pain will go away. :-)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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