I have been beyond frustrated with the nasty clear looking bag. ANd, my skin seemed irritated. So, I had some samples. I got a drainable because of the irritation. I was in a convatec clear hospital bag. I still have a couple left. It has a wafer built in (one piece) and then a sticky adhesive around the wafer to keep it secure. That sticky adhesive part has destroyed my skin!! (I'm waiting on moldable/convexity wafer and drainable left side bag with the velcro). So, I had a colopast one that has a smaller wafer. I have a sigmoid colostomy and my stoma is relatively small (1 1/8-1 1/4). So, the more oval wafer is a bit smaller then all the other adhesive. PLUS, it's an OPAQUE bag... dear god, WHY do they send you home with clear ones? I could of threw up on myself looking at it! And, it had no VENT!!! So, this one has a vent. I even blew air in it and close it and watched the air just seep out. amazing! THen once I knew it was secure (and I'm having all kinds of issues with my incision and the bag - they are TOO close, bu tno other choice. I have part of the wafer sticking up and used some tape to hopefully help hold it down. My poor steri-stripes look awful too - when that gets better I hope to not have wafer sticking problems anymore!), I plastered calmoseptine on the top part where there was no wafer anymore because it's smaller. My skin was already beat red from that darn fabric tape around the old pouch. And, while I was changing, I looked down and my stoma started to *poop* Oh, that was nice! I guess it isn't much wrose then a newborn, but it still smells. And, the main reason I did change the bag as well is because it started to look. I looked at the wafer afterwards and it looked fine. My only guess is that because I'm not getting a full closer from the incision and the steri-strips? And, the wafer started to tear a bit.
Any other bag recommendations? I think I like this coloplast one. And, I think I'm starting to go through the grieving process now... Part of me wants that nasty colon bag.. but another part of me is excited that I can look in the fridge or pantry and pick WHATEVER I want to eat..and not have to worry about what might cause pain later. That has been unbelievable. I had a hamburger yesterday, had bran flakes for breakfast with fruit, a FRESH apple, ICE CREAM and cake (for my nephew's birthday), and more! I'm hoping to venture into veggies this week. They still scare me a bit!
I'm just worried I'm doing it all wrong. My ostomy nurse told me not to change that bag from Thursday until Tuesday, but Friday when I got home, I realize I had so much paste ostomy over the stoma that there is a TINY hole of air and stool getting through (that stuff is THICK!). I tried to move it out of the way before taking it off, but no luck..so I change it yesterday... then changed it today after it started to smell.
Any tips on showering with an opaque cloth like bag? And, what is this stuff about a hair dryer?
I promise once I know what the heck I'm doing.. I'll CONTRIBUTE to the board. Thank you all.. I really appreciate it!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira. Onto Tsyabri. If I fail that, total colectomy.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 20 months old