Having a BAD couple days....feeling not good inside

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Veteran Member

Date Joined Sep 2007
Total Posts : 687
   Posted 5/17/2009 4:00 PM (GMT -6)   
So my panic attacks strated yesterday......I have been gettin lectures rom my family ad husband saying they cannot handle the way I am treating my body. I am having ahrder and harder timre emptying my bag it grosses me out. I weight 101.6 this am and my family says I likr this, but i dont, I had an ED ten years ago,but have never relapsed. I cardiac arrested from it, but i was also 78 lbs.....I am no where near that now.
I am panicking, trying to wean off pain killlers except for the am. I feel dead inside and I DO not know what to do...took some nause meds and xaanax,tried to take a walk, but i feel like am crawling out of my skin.CANNOY HANDLE THIS!
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic May 27 for poss. K pouch with Dr. Remzzi
"The Greatest Healing Therapy is Friendship and Love"

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 5/17/2009 5:11 PM (GMT -6)   

Lizzie--I am so sorry this is so difficult at the moment.  Your ileo was not planned and that can make the reality of it difficult.  Have you looked into a local support group through the UOAA?  There may be someone you could talk to that has been in your exact shoes.

At the least, please contact your doctor's office to get some assistance...you may need to make some medication adjustments.  Hang in there...your CC appointment is coming up and that could change everything:)  Please keep us posted on how you are doing...

Regular Member

Date Joined Nov 2007
Total Posts : 281
   Posted 5/20/2009 6:38 PM (GMT -6)   
Lizzie, I had my doctor's appointment this afternoon, and my small intestine is working. The tests showed my rectum was full of stool and my surgeon had never seen such so bad. I am scheduled to have an ileostomy on Friday, May 29 and hopefully will feel better than I'm feeling now.

Veteran Member

Date Joined Jan 2007
Total Posts : 662
   Posted 5/20/2009 8:34 PM (GMT -6)   
I'm so sorry you have to have another surgery.  I know that when you're feeling so terrible though, relief is all that you want.  I hope surgery goes well and you can be on the road to recovery.  Did you get any info about how long you might be in the hospital and recovery time?  Please keep us posted.  Where are you having surgery done this time?
Just wondering, did you know you had problems with your rectum before your colectomy?  Have you ever had trouble emptying?  I have a small rectocele, as well as pelvic floor dysfunction and sometimes I feel the stool in my rectum, but can't get it out.  If I drink something hot, it will eventually come out, but then it seems like I have horrible loose stools.  It's been almost 10 weeks since my surgery and I'm still trying to figure it out.  It seems like I am either constipated or have diarrhea.
How are you feeling now?

Veteran Member

Date Joined Mar 2008
Total Posts : 624
   Posted 5/21/2009 11:56 AM (GMT -6)   
Poor Lizzie
how is the pain though?  may be you need them still.
i understand the panicky feeling.  its not surprising.  you will be ok - you are not underweight at those pounds just yet i dont think.  what does yuor dr think? xxxx
I am very stressed and unhappy these days - my mum had a breakdown when i was in hospital so i had to get her admittted into psychiatric hospital about a couple of weeks after i was out, and i am running around for my dad who is in a nursing home but is coherent - he just cant walk due to a botched hip re-replacement,plus he calls me all day long and i told him not to casue i have to work, but has shortterm memory loss so i have to pull the plug out, and now my marriage is under stress cause we argue about finances. he wont give me any extra money to pay the bills (i pay the majority) cause i havent worked for 6 weeks.
 i have been gett ing tummy ache every day for the last few weeks and dont knowif it is food or stress.  i also cant cough cause it feels like i am being ripped open with a hot knife - it is so painful.  cry shakehead x
Karen 47 yrs
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
15 JANUARY 2009: scheduled for T/C
12 FEBRUARY 2009 - Re-scheduled T/C- (postponed as the Professor is away)
Loop Ileostomy - Due for reversal around June 2009

Regular Member

Date Joined Nov 2007
Total Posts : 281
   Posted 5/22/2009 7:30 PM (GMT -6)   
Janie, my surgeon said that I should be in the hospital 4-7 days and I should have about a 6 week recovery period.  I'm having my surgery done at home in Tallahassee this time, and really like the surgeon that is doing my ileostomy.
I didn't have any troubles with my rectum or emptying before my colectomy.  These problems just kind of cropped up this spring and have gotten worse.  My problems started this spring with my knowing that I would need to go to the bathroom and have the urge to push, but nothing would come out.  Laxatives didn't help any.
I'm cramping alot and my back aches.  I'm full of toxins again and my stomach is distended.  My husband helps give me enemas and kneeds my stomach and sometimes that helps a bit, but I am just ready to have my ileostomy and hopefully, feel healthy again.

Veteran Member

Date Joined Jan 2007
Total Posts : 662
   Posted 5/22/2009 9:58 PM (GMT -6)   


I'm sorry you have to deal with this and have another surgery, but it sounds like you've got a great attitude.  I hope and pray everything goes well and you have a speedy recovery.  It sure doesn't seem fair that you deal with the constipation for so long and feel like you're finally "normal" just to have another set of problems that you had no indication of ever having.  I know I have pelvic floor problems, and I sure hope it never gets bad enough to have to have more surgery, but at least I'm aware it's a possibility.  I'm sure for you it was a total shock.

Please keep us posted, and I'll keep you in my prayers!


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