Any Ostomy runners in the forum???

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Trigirl
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Date Joined Jan 2006
Total Posts : 768
   Posted 5/19/2009 7:53 PM (GMT -7)   
Was wondering if any one here has had the whole permanent bag thing and walks or runs for exercise? Right now I can walk but can't run much for losing control and having problems. I know someone wrote about swimming and that made my day way back when. I was wondering if when I get this operation I will be able to run again. I have had to give it up for the last few painful years but I would love to run again. I thought maybe if I could keep my eye on that star it might help me to feel better about this whole thing. wow..running again...Sigh

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/19/2009 8:38 PM (GMT -7)   
I haven't gone for a full out run but I have done some jogging around while playing with the dog. I emptied and made sure there wasn't too much jostling around and I was just fine! I have also done a lot of biking with no problems at all. I sure hope this helps you!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 5/19/2009 9:40 PM (GMT -7)   
i was walking on the treadmill and a walking path at the park, usually about 3 miles a day for a while but then i got lazy, lol. And i do lots of runnign chasing little boys in the yard!
And i dont have any problems. I dont suggest takign off running until at least 2 months after surgery, just because it will hurt your belly probably, the jostling and all.

The best thing to do for running/walking is to make sure you bag is secure, like wear a belly band or tube top around it then it wont flop out and annoy you!

once you heal up you should be just fine to run!

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 5/19/2009 9:41 PM (GMT -7)   
oh and like glaciergirl said, def make sure you empty before you go out, otherwise it will jiggle around.
And be sure you drink more water than you do now, cause you will dehydtare easier

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/19/2009 10:24 PM (GMT -7)   
Thanks glaciergirl and summerstorm. I will have to remember the advice. I have heard the comments about walking and moving after the surgery. Also remember you saying 2-3 months before recovered from surgery if things go well. I just want to keep my eyes to a goal when I know this will be the toughest thing of my life. (I have even gone through cancer once and it wasn't as hard for me as all this crohn's stuff has been. I'm not even through it all yet.

I appreciate your answers and taking the time to help.

donnaeil
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Date Joined Jun 2006
Total Posts : 1156
   Posted 5/19/2009 11:48 PM (GMT -7)   
There is a Chrone's runners organization which participates on runs and marathons. Try searching for them on the web.

Donnaeil

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/20/2009 6:27 AM (GMT -7)   
I walk, in fact I just got back from the gym...for some reason I cannot get back to running since my last surgery...but then again, I haven't tried since it started getting nice out!

There isn't anything I can think of that I don't do...like the others have said, find a way you like to support your pouch and empty before you go :-)

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 5/20/2009 10:12 AM (GMT -7)   
Not a runner, but my surgeon reassured me I can do anything..swimming, running, walking, get on a plane, swim, play hockey, and more!

I'm honestly a bowler..and that he said I could do too!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira. Onto Tsyabri. If I fail that, total colectomy.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 20 months old


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 5/20/2009 1:57 PM (GMT -7)   
When I had my bag, which I just got it reversed April 29th so it hasnt been too long ago lol I bought an ostomy belt which clips on the little hole things on the wafer and goes around your waist which keeps the wafer tight against you. I played basketball with all guys which you know they play hard and I just tucked my bag in my shorts and wore that belt and never had anything happen. And I played 2-3 times a week and ran in the park a little with my ostomy belt..Id deff recommend that =) It reassured me too so that helped and i didnt worry at all. I actually played without it once bc I forgot it at home and didnt have any problems =)
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008
Step 2 April 29th!!
 
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/21/2009 2:44 PM (GMT -7)   
Ohhh...I have a belt too. I just got it less that a week ago and I love it. It has really helped. The ostomy nurse actually just gave me one! Hollister makes the one I have. Look on their website or ask your nurse. Maybe you can get a freebie too!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/21/2009 6:07 PM (GMT -7)   
OK a belt. That will be at the top of my priority list (just after bags). Glad to hear you have done so well with the bag. Went for a long walk with some run and of course had the basic accident before I was home. Good thing I wear diapers these days. Not fun to run after that occurs. Burning rash, I can totally relate to babies with sore bums.

But hey with no bum I will run for hours again without problem. (Well, maybe bursting lungs and sore muscles will slow me, until I get in shape.)

Basketball is very streneous, so glad that is possible. I would love to have a freebie of anything, thanks for the thoughts. You don't know how much this keeps me from insanity right now.

I keep telling myself other people live through all this just fine and I can too. I just haven't completely convinced myself yet.

I go see my GI again June 21 first and I expect then I'll have to set a date...or not. I keep praying to know what to do but haven't heard the answer.
You know the place where you are sure this is right. That does happen to most people doesn't it?

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/21/2009 6:24 PM (GMT -7)   
The place where you know its right? The place i knew it was right was when i woke up and felt clean! Until then i was 99.95 percent sure it was right, but there was a nagging thing in the back of my mind. And with every passing day i got even more convinced it was right, actually 2 years later, something happens almmost everyday that affirms that it was the right decision. You wont believe the stupid little things that you will be so happy to do afterwards.
I cried with happines because i could eat some fries in the car! Now how stupid is that, lol.

It may help you to look through some of the famous people who have ostomies. Normally i dont care what celebriteis are up to, but when i found out that one of the Queens of England had one, Fred Astaire, one of the Bush brothers, Tony Snow even Napolone. Look what all those people accomplished! Surely i could handle raising a kid and cleaning a house!

I prayed for the answer too and i didnt realize until after i was healthy and realized what i was missing that i had been getting my answer everytime i missed something i could never get back.

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/21/2009 8:17 PM (GMT -7)   
WIse words
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