I can fully sympathise with your story. I had a similar experience in Dec when I had my ileo, 1 SCN was useless, but at my Mums where I was recovering, I found an angel who introduced me to Orahesive powders and paste and convex bags. Since my skin healed, I have investigated so many manufacturers bags and finally settled on Pelican Convex, with powder for when the skin breaks out, and use Cavilon spray barrier. But for me the most useful thin is a product by Eakin called Cohesive Slims. These are rings that are mouldable. I warm them and then place them directly onto the back of my bag. The bags may come adrift (without the seal would have resulted in leaks) but the seal always stays stuck. In fact last night, the only thing keeping my bag on was the seal and the belt that I wear with the convex bag. The seals are a god send, especially as I now have a huge hernia above my stoma. I am in the UK
Good luck to you. Ali
As a child, knee probs (patella tendon transfers and knee cap removal)
Endometriosis from age 18 and bowel problems diagnosed as IBS!
8 Laparotomies and numerous Laparoscopies
IVF x 2 (unsuccessful)
Hysterectomy and both ovaries removed in 90 (27yrs old)
Gastro Intestinal Neuromyopathy diagnosed in 91 (known as pseudo obstruction syndrome/slow transit)
Sigmoid and Left Hemi Colectomy in 95. Resulted in 5 yrs of relief!!!!!!!!
Probs started again in 2000, getting worse and worse
Diagnosed with Lupus in Nov 2006 (which they say could be to blame for all this misery!)
Loop ileo in Dec 08 (not sure how it can be slow transit as everything passes through in less than 1 hr! Still have full feling in upper gut though!)
Now considering IRA!!!!! Need advise please! Thx