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Regular Member

Date Joined Feb 2007
Total Posts : 79
   Posted 5/24/2009 1:28 PM (GMT -7)   
 I would like to direct this to all females that have had a Urostomy. I have a permenant Colostomy that was done three years ago this coming June 9,th, and I just had my rectum removed on the 30th of March,this year. No I found out that I may be looking at surgery to have a Urostomy done. I was just wondering if there are any females out there that may have one,and if so,could you please give some information about it. Like how was your surgery done,where did they put it,and how long were you in the hospital???? I would like to know as much as I possibily can. The Urologist said that he did not know if he would have to remove my bladder or just by pass it. He would know more,once he has some more test done on me,and then for sure once he got inside and started the surgery. I have had four bladder surgeries done in the past years.Three of them have just been tucked back up,and the fourth was put in to a net,but it only held for a few week. Now I have the Inter Stem Implant,and it is not doing the job any more.Everytime I lay on my sides at night I am up going to the bathroom at least 4 to 5 times a night,and can not lay on my back as I have a bad back.So I am just a mess and wonder about the Urostomy.If the doctors has second thoughts about it,I would to know enough about it,to push for one.
  Thank  you for reading this and hope to hear back for some of you females that may have one.
                                                                 Thank you                       San's

Post Edited (San's) : 5/24/2009 2:33:13 PM (GMT-6)

New Member

Date Joined Sep 2015
Total Posts : 1
   Posted 9/19/2015 10:34 AM (GMT -7)   
I have had my bladder removed and now wear a pouch/wafer by Hollister. My surgery was 10 years ago and I'm still learning new things about new products( to me anyway ) that help with leaks. My surgery was done by Dr John Forrest @ St Johns hospital in Tulsa, Oklahoma. I had interstitial cystitis severe enough to leak urine into my body cavity. When I gave up and had surgery I was septic. The surgery saved my life. I wish I had done enough research before hand though so I wouldn't have been so freaked out by the sight of the stoma for the first time. I would have coped better if I had known that it wouldn't look like that after a month or so. I still fight leaks, and I'm constantly searching for undies that'll help support the bag everyday and for intimacy. I'm 44 yrs old now but there are lots of things that I thought I had lost forever. Swimming and sex are no longer spontaneous.
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