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husky_79
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/27/2009 1:44 PM (GMT -7)   
I was in the hospital for rehab for a broken leg that resulted from a fall during rehab for a knee replacement.
During this stay I had my heart to stop. I do not remember much for at least two weeks when I woke to find my hands restrained and tubes in both nostrils. They tell me this was because of heavy sedation. I had for these two weeks the most horrible nightmares of my life. I actually believed these to be true. Anyway, I was told by my surgeon that what saved my life was the removal of about three feet of intestine that had died due to loss of blood flow. This was in December and now I am facing the reversal procedure when my orthopedic doctor releases me. This ostomy has been a real problem to deal with especially since my wife and kids are involved as well. I don't know if I have the nerve to undergo the same stuff as when they did this. Hopefully I won't have to go through the same thing as when they did the ostomy. Presently I'm not having that many problems other than the maintenance of the thing which pretty much rules my life. I have been on disability which is better than nothing but I do need to get working again. I'm taking a chance that I will be able to eat normally. This is my first entry and there is much more to my tale than this.

Bill (husky_79)
[url]

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/27/2009 8:57 PM (GMT -7)   
There are so many things out there that can help you deal with this so it doesn't rule your life! I know this is probably a more difficult adjustment for you because you did not make the choice yourself! If you want to ask more specific questions you will get some great answers. I have my ileo about 6 weeks ago. I am back to work with active students, I am going out with friends to packed bars, I am even dancing, running, riding my bike! There isn't anything you can't do. Your mind is a very powerful thing and once you realize that you CAN do this you will be just fine. I'm not saying this isn't hard because I have had my breakdowns and rough spots but I certainly got through it. YOU CAN TOO! Good luck! Feel free to ask anything here!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


husky_79
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/28/2009 7:50 PM (GMT -7)   
Thanks a lot for the reply. I am monitoring this situation constantly and will be so glad to put it behind me so I can attack this knee/leg problem and maybe become somewhat normal. Thanks for the suggestions that you gave to me.

Regards, Bill

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 5/29/2009 8:32 PM (GMT -7)   
Bill,
You've been through a lot of scary stuff lately. I don't blame you for not wanting to rush into more surgeries and hospital stays!
Most of us have had the luxury of choosing (more or less) to have ostomies placed.
The good news, like Glaciergrl said, is that you can lead a normal life if you chose to have your ostomy forever.
Maybe in a few years, you'll feel like you can have it reversed, but you don't have to.
The care of your ostomy will not rule your life forever. You will eventually have a routine, know what to expect, and things will go so fast (used to take me 30 mins, with my husbands help, but now 10 mins max). It gets easier.

Good Luck to you.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


xpsychosomaticx
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/30/2009 9:32 AM (GMT -7)   
Bill, i understand what youre going through, the same thing kinda happenned to me, the ileostomy wasnt planned, but was the result of emergency surgery, i was packed with tubes here and there, and the realistic nightmares/hallucinations caused by morphine, and now theres talk of deciding to undergo a reversal. as others have said as time goes on youll find it easire to deal with and it wont rule your life. it wont stop you from going back to work or anything once you become comfortable with it.

If you do decide to go for the reversal, it mightnt be as bad afterwards because youll be in better shape going into the surgery so recovery might be easier, then again (not saying this to scare you) when i was in hospital the person in the bed beside me was in for a reversal but had been in for two years because of complications and stuff i think. ultimatly what you need to do is discuss it with a specailist surgeon in the area, and work out with them if it is the right thing for you at this time. Hope it all works out well for you

husky_79
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/30/2009 12:34 PM (GMT -7)   
The one thing that I did learned to appreciate from all this is the kindness of people, some with worse afflictions than mine. My mom once told me that "If I hung my problems on the line alongside of everyone, I would choose my own to take back."
I very much appreciate the comments that I have received and I hope that I can lend my support to anyone that needs it.

Bill
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