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New Member

Date Joined Mar 2009
Total Posts : 6
   Posted 5/27/2009 4:31 PM (GMT -6)   
hi this is my first time to post.  Just had an ileostomy two weeks ago today.  My problem is shortness of breath when I try to walk. Has any one else experence this? It started a few days ago. Went to the er and they ran all kinds of tests and found nothing just a little dehydrated.  Gave me one iv.

Regular Member

Date Joined Mar 2008
Total Posts : 137
   Posted 5/27/2009 4:38 PM (GMT -6)   
Hi Rose-Bud,

Did they check your iron level? After my surgery, I had low iron due to blood loss, and had shortness of breath and rapid heart beat, so they gave me a few iron supplements and i was fine after that....

Just a suggestion--it probably could be many things! Hope other than that your new ileo is treating you well! :) Each day will get better/easier!


Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 5/27/2009 4:53 PM (GMT -6)   
Definitely a symptom of dehydration. You might want to drink an electrolyte beverage and eat salty snacks. Merely drinking water is not enough. This should resolve over time but is very common for new ostomates.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

New Member

Date Joined Mar 2009
Total Posts : 6
   Posted 5/28/2009 3:35 PM (GMT -6)   
thank you Little E, Suebear & Nascaron....I have not had my iron checked but,did have the potassium and
magnesium & they were good. I am trying to drink 10 8oz glasses a day now but still breathless if I try to walk to far.
Also really having trouble with the bags. They are only lasting 2 days at most. I have a home care nurse 2 days a week and she is trying to get me a different kind. I was taking pain pills but quit when I started having shortness of breath.

dx 2005
tried all meds even remicade
I will be glad when it all over and I can say I am med free
still on tapering predisone.

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 5/28/2009 8:28 PM (GMT -6)   
I would let your doctor know and ask if you should be measuring your fluid intake and urine/ostomy output to check for dehydration. The numbers should come out fairly even, and the nurse can bring you the plastic containers used for measuring.
If you are dehydrated, you can receive IV fluids at home.  
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 5/28/2009 9:15 PM (GMT -6)   
Ask the nurse if she can bring you some convex wafers with Eakin Seals or call your supplier to order some. They work really well at preventing leaks.

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 5/29/2009 10:37 PM (GMT -6)   
Shortness of breath could be just normal for recovery. It took me a couple of months to be able to walk far without exhaustion. I'd be tired from taking a shower. Or walking to the car. I felt like I was so out of shape.
Probably from being bed ridden for so long.
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 5/30/2009 3:37 PM (GMT -6)   
Hi  i suffered deyhdration a few times and got admitted to hossy and put on fluids  i was advised by dietician there to make up isotonic drinks which is 200ml of sugar free cordial or (squash for UK'ers)add 800ml of water and one teaspoon of salt drink throughout the day (best chilled) as well as other fluids the recommended amount of fluids is 2 litres a day i have been doing this and have been much better and no more hossy visits  Bev x 

Diagnoised with crohn's at 13 now 42
resection, right hemi 1993
In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma
 No maintance drugs as such on B12 shots,iron syrup,loperimide 20mg  EScitalopram 4 anxiety.

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