New ileostomy on Friday morning and an doing great so far!

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Regular Member

Date Joined Nov 2007
Total Posts : 281
   Posted 6/1/2009 3:11 PM (GMT -6)   
Hi every body.  I had my colectomy in 8/07, but in 3/09 it startd not working and  my only choice was to do an ileostomy. I have a motilility dosorder and my stools were not moving.  I am on a clear liquids diet  and might be aboe to have some food tomorrow.
Everyone at the hospital, and my husband, have been wonderful to me.  My ileo is temporary though, if I ever want to change it.  Palms Of Pasadena Hospital in St. Petersburg does this and has thei oqn specialized traing wing. 
colectomy in 8/07
ileostomy in 5/09

Veteran Member

Date Joined Sep 2007
Total Posts : 687
   Posted 6/1/2009 4:06 PM (GMT -6)   


So glad to hear you are doing so well......everything went smoothly. Is the stoma working yet or still asleep? I wish you the best. Still thinking of reversing it like me???? I hope we can both find this as an option down the road after recevering from the ileo. Thinking of you and praying for you daily.


Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic in six weeks for further testing....awaiting approval.
"The Greatest Healing Therapy is Friendship and Love"

2b ColonFree
Veteran Member

Date Joined Nov 2008
Total Posts : 2603
   Posted 6/1/2009 4:18 PM (GMT -6)   
Lori, i'm so glad surgery went well, i wish you the best!
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 6/1/2009 5:46 PM (GMT -6)   
Hey Lori,
I'm glad you're doing so well. Have you met with an ostomy nurse yet? When you remove the wafer they gave you in surgery, ask the nurse for some adhesive remover wipes to help get it off. I hope you get to eat some real food tomorrow!
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 6/2/2009 5:21 AM (GMT -6)   
Sounds like you are doing well...and you are in Pasadena!! I LOVE that area:)

Don't forget to walk!

Veteran Member

Date Joined Jan 2007
Total Posts : 662
   Posted 6/2/2009 11:44 AM (GMT -6)   
So glad to hear you're doing so well. You're in my thoughts and prayers...keep us posted!


Veteran Member

Date Joined Jan 2007
Total Posts : 662
   Posted 6/16/2009 9:01 PM (GMT -6)   

Just checking to see how you're doing. Hope you're continuing to do well!


Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 6/16/2009 10:37 PM (GMT -6)   
Glad you are being taken care of well.

You are going to feel so much better!

When you finally get to eat, even the hospital food will taste soooo good.
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

Regular Member

Date Joined Mar 2009
Total Posts : 22
   Posted 6/16/2009 10:49 PM (GMT -6)   
Hey butterfly, how are things going for you today? I wish the best for you.
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