Ileostomy 4 wks ago

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rose-bud
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 6/8/2009 5:20 PM (GMT -7)   
I need help.  I had an ileostomy 4 wks ago.  thursday is my grandsons graduation at 7 pm. Im told once you get into the auditoruim you can leave until the graduation is over. So....if I don't eat anything after say 3pm will I be safe and not have to empty the bag for 3 or 4 hours. I know it's crazy but I am really worried about.
I go tomorrow for my 4 week check up and hope he may be able to give me an idea when we can do the take down.
had uc 5 years
tried all meds
nothing helped

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/8/2009 6:30 PM (GMT -7)   
Surely they'll have toilet breaks.
they can't expect u to go that long. It's unreasonable. Plus if u tell them it's an emergency.......
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 6/8/2009 7:08 PM (GMT -7)   
If you don't eat much, you should be able to make it through the entire graduation.

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 6/8/2009 7:15 PM (GMT -7)   
I just sat on an edge near the back for my sons graduations and left once and came right back. All five times no one made me sit back down or wouldn't let me back in. An emergency is a good reason!!! Not eating for awhile before sounds like a good plan but you can leave if you have to.

Hope it's a nice ceremony.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/8/2009 8:31 PM (GMT -7)   
if you dont eat though, you might get bad gas.
I would take some immodium before hand and that should help slow it down. Also eat some thickening foods, like frenchfries or something.
But i think you should be able to get out.

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 6/9/2009 4:01 AM (GMT -7)   
No one can stop you going to the loo if you need to surely? You're an adult and they have no control over what you do. If you need to go, then go :)

PS as Summerstorm mentioned, not eating = lots of gas so try and have a little bit of something in your tummy at all times :)
I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 6/9/2009 8:11 PM (GMT -7)   
Just wanted to wish you a good time at the graduation - I think everyone else covered this topic pretty well.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


rose-bud
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 6/11/2009 5:28 AM (GMT -7)   
THANK YOU FOR YOUR ALL SO MUCH FOR YOUR REPLIES.....FORTUNATLY WHEN I WENT TO THE DOCTOR
TUE HE GAVE ME A PREscriptION FOR IMMODIUM SO HOPEFULLY THAT WILL HELP.
MY NEXT PROBLEM IS BEING SO SHORT OF BREATH ESPECIALLY WHEN I STAND OR WALK. IT HAS BEEN 4 WEEKS SINCE MY ILEOSTOMY AND THE DOCTOR WANTS TO DO THE TAKE DOWN IN 3 WEEKS. I'M JUST WORRIED about MY BREATHING. HAD ALL KINDS OF TESTS AND THEY CAN'T FIND ANY REASON WHY I AM BREATHLESS. AGAIN THANKS
I AM HAVING MY SURGERY IN CHAPLE HILL NC.
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